Oldie But Goodie – Mental Illness & Ignorance

Originally posted June 2, 2013

I wrote this post thirteen years ago. It is still relevant today. The “Inmates” of these New York State Insane Asylums / State Hospitals were not criminals, (with the exception of the two State Hospitals / Prisons for the Criminally Insane: Matteawan and Dannemora). They were just people who needed help with nowhere to go. Sounds like today. 150 years ago, we at least tried to put these people in a safer place rather than leaving them on the streets or living on the county poor farms where women and children were raped and abused. The state built these hospitals with good intentions, then they tore them down with good intentions, and where are we now? People are still living on the streets. If and when the state ever decides to build these hospitals again, there must be strict guidelines to follow. No more than 150 to 200 patients per asylum. Good, qualified doctors, nurses, and aides who are well trained and well paid, not “the Patricks’ and Bridgets” who just got off the boat and needed a place to live and work. We’ve all seen the videos of low paid, unqualified, cruel nursing home staff who beat up the elderly. This is not a job for everyone and I’m sure that cruel and inhumane treatment happened in state hospitals as well. This is unacceptable! Some people may never recover from their illnesses but the great majority that will recover with medication, outpatient counseling, and guidance, should be able to leave the hospital and live their lives. Not like 150 years ago when you could never get out. I have waited for the release of my great-grandmother’s medical records who died at Willard 98 years ago. I think I will not be alive to ever see them. The release of anonymous burials and long forgotten medical records are in the hands of New York State. Let’s hope after all these years they will do the right thing. Below is the original post. Thank you.

I am the first to admit that I didn’t have a clue about what mental illness really is, and I have never claimed to be an expert on this issue, because I am not. When I discovered that my great-grandmother was sent to Willard State Hospital at the end of her life, it made my stomach flip and I felt overwhelming sadness. I remember reading her obituary over and over again to see if I had read it correctly. I even asked myself, could there be another state hospital at Willard that wasn’t a mental institution? Did she really die there? Why was she sent there? What was her diagnoses? Before I lose your attention, let me explain who was sent to Willard so that you will no longer be uneducated, unaware, or uninformed. Anyone who was not considered “normal” was sent to Willard including the elderly with Dementia and Alzheimer’s Disease. Remember, there really were no nursing homes until the 1950s. Others were Hearing Impaired, had Developmental Disabilities, were Trauma Victims including Victims of Domestic Violence and Rape (back then they called it “Seducer’s Victim”), had PTSD (Soldier’s Heart & Shell Shock), Menopausal Women, Depression, Anxiety Disorders, Brain Injuries, Stroke Victims, Epilepsy, Neurological Disorders, Psychiatric Disorders, and some were locked up because of their sexual orientation, personal beliefs, and religious beliefs.

You have to ask yourself, why are we so ignorant on this issue? Why are we receiving the great majority of mental health information from television commercials put out by the pharmaceutical companies and Dr. Phil? God Bless Him! Why is the jail at Riker’s Island being used as the largest mental health facility in the country? This is how we used to treat the mentally ill 150 years ago. When we pay our taxes which is a huge burden on the people of New York State, we assume that the people appointed to these high paying positions are actually doing their jobs and taking care of the people they are supposed to be advocating for; those who need the most help. Obviously, this is not the case and this abuse of the public trust needs to end.

Are burial records available to the public? Yes, but you would have to sit in the town clerk’s office and pull out each record that applies to that county’s particular state hospital or custodial institution. If you post their names online, you run the risk of being charged $10,000 for each violation, or each person. It would be much easier to record this information from each institution’s burial ledgers. Is it ridiculous that the Office of Mental Health classified burial records from state facilities as medical records? Yes. Were they really protecting the identities of former patients? No. In every correspondence that I received, it was made crystal clear that this was done to protect the families because some may find it offensive. Not only has the OMH insulted families and descendants of these people who were buried in anonymous graves, they have contributed to the stigma. They need to step out of the way, focus on the living, and hand over the burial ledgers to cemetery groups and responsible volunteers who will get the job done at NO cost to the state. Our ancestors and our families have nothing to be ashamed of! That would be like being ashamed of heart disease or diabetes. Putting names on a memorial, headstone, or list, should not be offensive to anyone, unless, of course, you are ignorant.

“I Got A Name” by Jim Croce

CLICK HERE TO VIEW THE VIDEO They’re Buried Where? by Seth Voorhees

The list of these former New York State Hospitals includes but is not limited to: BinghamtonBuffaloCentral IslipDannemoraEdgewoodGowandaHudson RiverKings ParkLong IslandManhattanMatteawanMiddletownMohansicPilgrimRochesterSt. LawrenceSyracuseUtica, and Willard

The Feeble-Minded and Epileptic Custodial Institutions of New York includes but is not limited to: Craig Colony for EpilepticsLetchworth Village for Epileptics & Developmentally DisabledNewark State School for Developmentally Disabled WomenRome State School for Developmentally Disabled Adults & Children, and Syracuse State School for Developmentally Disabled Children. There may be more.

THANK YOU! 12.7.2025

This is from my friend, Ryan Thibodeau, who with a few others, are trying to change the New York State law on Mental Health concerning people who were institutionalized in the 19th and 20th centuries. I know, it’s ridiculous that we even have to do this but that’s New York State and the Office of Mental Health. This HIPAA Law should not even apply to people dead for fifty years and that is according to Federal Law that was passed in 2013. Keep your fingers crossed and pray. I don’t know who else would ever pick up this task after this giant effort. Thank you to all of you who sent your story in! I’m closing the application.

Sincerely, Lin Stuhler

“Good evening, all,

“My name is Ryan Thibodeau, and I’m part of the group that is trying to change the state’s mental hygiene laws to make old records of institutionalized people more accessible to families like yours. Many thanks for completing the Google form and for your willingness to share your ancestor’s story. We really appreciate it!

I forwarded the information you entered into the Google form to the journalist several weeks ago and she has indicated that she is pursuing an article on this important topic. I don’t know anything about the timing of the article’s publication, its content, who she’ll be contacting, and when she’ll reach out. That’s out of my hands and up to her discretion.

The group is looking forward to continuing pursuit of our bill in the New York State legislature when the new session opens on January 7. As we ramp up our effort, it’s likely that I’ll write again and ask especially the New York State residents among you to write letters in support of our bill and contact your State legislators to urge their support. Stay tuned!

Once again, thank you so very much for your assistance! I’ll be in touch again soon.

All the best, Ryan”
Ryan Thibodeau, Ph.D.
Professor of Psychology
Licensed (Clinical) Psychologist, New York State
Board Member, NAMI Rochester

THANK YOU FOR YOUR PARTICIPATION! THIS IS NOW CLOSED. 12.7.2025
*****

Increasing Access to Records of Institutionalized People in New York State
WE NEED YOUR HELP! 10.27.2025

Beginning in the 19th century, New York State has operated a large number of institutions designed to serve individuals with psychiatric disorders (for example, “insane asylums,” “state hospitals,” “psychiatric centers”), developmental disabilities (for example, “state schools,” “developmental centers”) and other disabilities (for example, an “epileptic colony,” “an inebriate asylum”). 

Are you a descendant of a person who was institutionalized in one of these places in New York State?

Is your knowledge of your ancestor or the circumstances surrounding their institutionalization limited? Would you like to learn more about them?

Have you tried but failed to get New York State – the Office of Mental Health (OMH), the Office for People with Developmental Disabilities (OPWDD), or facilities they operated – to release records of your ancestor’s institutionalization?

A group in New York State is trying to change the state’s mental hygiene laws to make old records of institutionalized people more accessible to families. As part of this effort, the group has connected with a journalist who may be interested in writing an article about this topic. If you would be willing to share your story with the journalist to be featured in a possible article, please complete the brief form below. Your information will then be forwarded to the journalist. Your help is greatly appreciated!

Willard Cemetery at FIND A GRAVE

New York State Hospitals at FIND A GRAVE

As I find more, I will add them to this list.

Willard State Hospital Cemetery: Willard Asylum Cemetery in Willard, New York – Find a Grave Cemetery

Gowanda State Hospital Cemetery: Gowanda State Hospital Cemetery in Collins, New York – Find a Grave Cemetery

Binghamton State Hospital Cemetery: Binghamton State Hospital Cemetery in Binghamton, New York – Find a Grave Cemetery

Central Islip State Hospital (No Names-Only Numbered Graves): Central Islip State Hospital Grounds Cemetery in Central Islip, New York – Find a Grave Cemetery

NO TOUR at The Willard State Hospital Campus in May 2016

According to Teri Weaver at tweaver@syracuse.com, “No tour of Willard insane asylum for 2016, NY state says” As far as I know, the cemetery is always open to those who wish to visit and pay their respects.

Willard at newyorkupstate.com/finger-lakes

Willard at newyorkupstate.com/finger-lakes

Willard Cemetery Memorial Celebration 5.16.2015

The Willard Cemetery Memorial Project chair Colleen Spellecy of Waterloo said the ceremonies will begin at 11 a.m., Saturday, May 16, 2015, at the cemetery, located near the east shore of Seneca Lake. It is being billed as a memorial celebration for all those interred at the cemetery in unmarked graves, with a special remembrance of Lawrence Mocha.” Two 3 hour tours of Willard will begin at 9:00am and 1:00pm with the Memorial Celebration at 11:00am.

Lawrence Mocha

Lawrence Mocha

Mocha was born June 23, 1878 in Austria. He emigrated to the United States in 1907, settling in New York City. He experienced some mental issues that ended up with him being sent to Willard in 1918. He stayed there until dying Oct. 26, 1968, at the age of 90.

Memorial Plaque

Memorial Plaque

During his 50 years at Willard, he dug more than 1,500 graves for his fellow patients. The cemetery operated from 1870 to 2000, and those who died at the psychiatric center, both with and without family, were buried in graves marked only by a number.”
SOURCE: Finger Lakes Times – March 22, 2015.

The Lives They Left Behind: Suitcases from a State Hospital Attic.

Willard Drug Treatment Campus – 7116 County Road 132, Willard, NY 14588.

Home In The Finger Lakes – Public Tour Of Willard.

5.17.2014 – Willard Tour

Finger Lakes Daily News

Saturday, May 17, 2014
WILLARD DRUG TREATMENT CAMPUS
7116 County Route 132
P.O. Box 303
Willard, NY 14588-0303

Willard Cemetery 2 - 5.18.2013

Willard Cemetery 2 – 5.18.2013

 

 

 

2013 Follow-Up to State Hospital Cadavers

After my post yesterday, 1893 State Hospital Cadavers, a reader asked, “How long did this go on?” I didn’t know but I felt that it didn’t go on for very long. I was thinking about 20 years or so. Another reader stated that it is still the law in New York State and she included a link to the statute. She was right and I was very wrong! After reading the law I was amazed at how little it has changed since 1893. The reason I thought that this practice didn’t go on for very long is because of the thousands of anonymous graves in every state of this country. Even today cemeteries have special lots that are reserved for the poor and for bodies that no one has claimed. According to this law, one would think that any body that wasn’t claimed within the 48 hour time period would be given to a medical university but that doesn’t seem to be the case. Willard State Hospital Cemetery, which was used for 130 years, has close to 6,000 unmarked, anonymous graves. This cemetery is the final resting place of the patients that no one claimed. That’s only 1 New York State Hospital out of 17. I’m sure that somewhere there is a list of those deceased patients whose bodies were given in the name of medical science. That information would certainly be in the patient’s medical records which as of this date, are unavailable to the public. If anyone can explain this law further, please feel free to do so. If you would like to learn more about this subject, please click on the RED links below.

N.Y. PBH. LAW § 4211 : NY Code – Section 4211:
Cadavers; Unclaimed; Delivery to Schools for Study.

“1. Except as hereinafter provided, and subject to the conditions specified in this article, the director or person in charge of any hospital, institution, morgue or other place for bodies of deceased persons not interred or otherwise finally disposed of, and every funeral director, undertaker or other person having in his or her lawful possession, any body of a deceased person for keeping or burial, shall deliver every body of a deceased person in his or her possession, charge, custody or control not placed therein by any person, agency or organization for keeping, burial or other lawful disposition to:

(a) any medical college, school or institute including chiropractic colleges registered by the regents of the university of the state of New York as maintaining a proper standard;

(b) any university within the state authorized by law to confer degrees of doctor of medicine or doctor of dental surgery;

(c) any other college or school incorporated under the laws of the state of New York for the purpose of teaching medicine, anatomy or surgery to those on whom the degree of doctor of medicine has been conferred;

(d) any university within the state of New York having a medical preparatory or medical postgraduate course of instruction; or

(e) any college, school or institute maintaining a mortuary science program that has either been approved by the department or holds a certificate of accreditation from an accrediting organization recognized by the department pursuant to article thirty-four of this chapter, provided, however, that such bodies remain unclaimed by any of the aforementioned institutions. Any college, school or institute maintaining a mortuary science program may only claim and utilize such bodies for anatomical and embalming instruction purposes.

2. The professors and teachers in every university, college, school or institute hereinbefore specified may receive the body of a deceased person delivered or released to the university, college, school or institute, as herein provided, for the purposes of medical, anatomical and surgical science, anatomic embalming, and study.

3. No body of a deceased person shall be delivered or released to or received by, any university, college or school or institute.

(a) if, within forty-eight hours after death it is desired for interment or other lawful disposition by relatives and in the counties of Oneida, Onondaga, Oswego, Madison and Cortland, by relatives or friends, or,

(b) if prior to his or her death, the person shall have expressed a desire that his or her body be interred or otherwise lawfully disposed of, is carrying an identification card upon his or her person indicating his or her opposition to the dissection or autopsy of his or her body, or,

(c) if the deceased person is known to have a relative whose place of residence is known or can be ascertained after reasonable and diligent inquiry.

4. (a) A body of a deceased person shall not be delivered or released to, or received by a university, college, school or institute, if within twenty-four hours after notice of death by the person having lawful possession, charge, custody or control to the next of kin, or in the counties of Oneida, Onondaga, Oswego, Madison and Cortland to the next of kin, or friend of the deceased person such next of kin or friend shall claim such body for interment or other lawful disposition.

(b) Unless a relative or friend of the deceased person shall claim the body of the deceased person within forty-eight hours after death, or within twenty-four hours after receipt of notice of death as provided in paragraph (a) of this subdivision, the next of kin, relatives or friends, as the case may be, shall be deemed to have assented to delivery or release to, and receipt by the university, college, school or institute, of such dead body.”

SOURCE: FindLaw for Legal Professionals-Cadavers; Unclaimed; Delivery to Schools; Procedure.

FindLaw for Legal Professionals-NY Code-Article 42: CADAVERS.

FindLaw for Legal Professionals-Cadavers; Delivery to Relatives or Friends.

FindLaw for Legal Professionals-Cadavers; Autopsy by Order of Hospital Authorities.

Post-Mortem.

1873 Our State Charities

“The State Board of Charities, of which Dr. Charles Hoyt is the Secretary, and Prof. Theodore W. Dwight the President, has just issued its fifth annual report. The duty of this Board is to inspect the public charities of the State, and make such recommendations to the Legislature as they deem best on their management. Few who have not studied the subject can have an idea of how broad is the field of work of our charities receiving aid from the State. Their property interest alone is enormous, amounting during the past year to $20,450,272 of real estate, and $3,727,602 of personal property. The aid they received from the State Treasury reached the sum of $1,635,558, and from municipalities the large amount of $3,341,762, while their total annual receipts were $7,832,902, and their expenditure $7,259,568. The whole number of persons in these institutions during the year was 92,741; the number temporarily relieved, 98,368; the number receiving outside free medical and surgical aid, 294,364, and the number under gratuitous educational training, 70,339.

In the County Poor-houses alone were, during the year, 18,933, and in the City institutions 39,286 persons. The Houses of Refuge trained and sheltered 5,619 of our youth, the Catholic Protectory containing much the largest number, 2,380. Of idiots, 681 were specially cared for, and of inebriates, 315 in the Binghamton Asylum. The number of deaf and dumb instructed and relieved were 714; of blind, 549;  of insane, 5,073.

The report of Prof. Dwight in regard to the management of our County Poor-houses contains suggestions of the highest value. It is well known that when this Board began its labors, the condition of these misnames houses of charity was shocking in the extreme. There was but little classification; old and young, unfortunate, virtuous girls with abandoned prostitutes, children and hardened ruffians, sand and insane, sick and well, the purely unfortunate and the lazily vicious, were all herded together in one building, and sometimes in the same rooms. The result was that one of the most terrible diseases which can afflict a civilized community began to break out here in our rural districts-hereditary pauperism. The Secretary of the State Board visited one almshouse in Western New-York where four generations of females were prostitutes and paupers. Even at this time, in the Westchester Almshouse, there are two or three generations of paupers. The treatment of the insane and the blind or deaf or sick in these institutions was simply atrocious. The first great step of reform in the State was the classification of the insane, and the withdrawal of large numbers from the County Poor-houses and the placing them in the State Willard Asylum, on Seneca Lake.

Still another important measure was the separation of the pauper children in Broome County and several adjoining counties from the almshouses, and placing them in an institution near Binghamton, called the “Susquehanna Valley Home.” This wise measure, however, should at once be imitated in all parts of the State. A poor-house is no place for children. They catch the bad habits of the institution, and they grow up lazy and dependent. They are paupers even in childhood. The taint of an almshouse rest on them all their days. Of girls, it is well known that they are often corrupted in these places before they go forth in life. There is no excuse in this country for retaining a single child in a poor-house. The demand everywhere for children’s labor is beyond all supply, and thousands of homes are open to shelter and instruct such unfortunate children. Before the Randall’s Island Nursery was so exclusively under Roman Catholic influence, the Commissioners of Charities used to send forth each year hundreds of their little waifs, under the charge of the Children’s Aid Society, to homes in the West, where many have grown up as prosperous farmers. All our almshouses could easily thus dispose of their children, if of sound mind and body. Indeed, the report of the “State Charities Visiting Society“-alluded to very favorably in Prof. Dwight’s report-states that the Children’s Aid Society had offered to the Westchester County Poor-house where are housed some sixty pauper children-to send them all to homes without expense.

The only place for a pauper child is a family. Even the Binghamton Home would fail of its great object if it retained the children during any long period. We trust that an act will pass during this session of the Legislature, requiring the Superintendents of the Poor in the various counties to place their pauper children in intermediate houses, like the Susquehanna Valley Home, which institutions shall be under State and private management. Every five counties should be allowed a “Children’s Home,” and the counties need not be required to pay any more for the support of the children than they do now. Then each Home should be required to place out very carefully every sound pauper child after a six months’ residence. Prof. Dwight also recommends, very wisely, the establishment of “industrial almshouses.” Our county poor-houses are full now of able-bodied paupers. Each Winter they sail in there for harbor. They ought to be made to support themselves. As it is now, the county paupers of the State only pay one-fifth of their cost, or about $32,342. If State work-houses were established these county able-bodied paupers could be separated, classified, and made to earn their living. Then the county houses could be limited to the sick, aged, and helpless. All that considerable class, moreover, who commit minor offenses, and are put for short periods in county jails, ought to be placed where they would support themselves, and at the same time learn some useful branch of industry.

At present these petty criminals spend their time in complete idleness in the county jails, and go out worse than they entered. To improve this class there should be a separate department in the State work-houses proposed, and the criminal statutes should be changed, so that the magistrates could commit them to these, and for longer terms than is at present the custom. We trust that the present Legislature will enlarge the authority of this Board, and enable it to go on with the great reforms which it has inaugurated.”

SOURCE: The New York Times. Published: January 14, 1873, Copyright @ The New York Times.

Jon Crispin – Willard Suitcases

Here is the link to Jon Crispin’s beautiful new website, Willard Suitcases.

Jon Crispin Suitcase 6 - http://joncrispin.wordpress.com/

Jon Crispin Suitcase 6 – http://joncrispin.wordpress.com/

Jon Crispin Suitcase 2 - http://joncrispin.wordpress.com/

Jon Crispin Suitcase 2 – http://joncrispin.wordpress.com/

Lin Stuhler’s Willard Cemetery Project

Thanks, Jon!

joncrispin's avatarJon Crispin's Notebook

Central stairway, Chapin House, Willard Asylum

There are a lot of great and interesting people working on New York State asylum issues.  I have been following Lin Stuhler’s work on the Willard cemetery for a while, but only had the chance to meet her a few months ago.  We keep in touch, and she just emailed me with a link to her recent blog post about the recent open house, and the bill she has been pushing in the state legislature to name the people buried at the graveyard.  There is also a link to a really great video that was made by her local cable company.  It is an interesting post and there is some nice video footage of some of the buildings and the cemetery.  She has a real passion for this issue and should be commended for all the hard work she has done in the name…

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