S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate

S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

NEW HIPAA UPDATE March 2013!

Well, the bill has a new number but it’s not dead! Yay! Special thanks to Senator Joseph Robach and Tim Ragazzo!

On March 1, 2013, Tim Ragazzo, Director of Operations & Legislation from Senator Joe Robach‘s office, called me to let me know that the bill was re-introduced (with a new number), to the NYS Senate and has been referred to the finance committee. This is great news because it means the bill is not dead! Now it has to pass in the Assembly. Hopefully, the bill will become law before it expires at the end of 2014.
-L.S. Stuhler at lsstuhler@gmail.com

Willard Cemetery Disk by Roger Luther at nysAsylum.com

Willard Cemetery Disk by Roger Luther at nysAsylum.com

NAMES INSTEAD OF NUMBERS!

Willard Cemetery 2 by Roger Luther at nysAsylum.com

Willard Cemetery 2 by Roger Luther at nysAsylum.com

For more information about these long-closed New York State Hospitals, check out the “Interesting Articles & Documents” page.

LIST OF STATE HOSPITALS

By 1901, there were thirteen state hospitals for the insane in the State of New York. All these hospitals buried their dead in anonymous, unmarked graves. Some had their own cemetery like Willard State Hospital; others used city and county cemeteries like Rochester State Hospital. Most of these state hospital cemeteries are unmarked, unkempt, and forgotten. None of the thousands of former psychiatric patients’ names have been released to the public. Considering that in 1870, the first patient was buried in the Willard Cemetery, which in the year 2012 covers a span of five or six generations, these people have waited long enough to be remembered. When you release the names, you remove the stigma. The following is a list of most of these long-closed state hospitals; there are more.

1. Utica State Hospital – Counties of Fulton, Hamilton, Herkimer, Montgomery, Oneida, Saratoga, Schenectady and Warren.

2. Hudson River State Hospital – Counties of Albany, Columbia, Dutchess, Greene, Putnam, Richmond, Rensselaer, Washington and Westchester.

3. Middletown State Hospital – Counties of Orange, Rockland, Sullivan and Ulster.

4. Buffalo State Hospital – Counties of Erie and Niagara.

5. Willard State Hospital – Counties of Allegany, Cayuga, Genesee, Ontario, Orleans, Schuyler, Seneca, Steuben, Tompkins, Wayne and Yates.

6. Binghamton State Hospital – Counties of Broome, Chemung, Chenango, Cortland, Delaware, Madison, Otsego, Schoharie and Tioga.

7. St. Lawrence State Hospital – Counties of Clinton, Essex, Franklin, Jefferson, Lewis, Onondaga,Oswego and St. Lawrence.

8. Rochester State Hospital – Counties of Monroe and Livingston.

9, 10. Long Island State Hospital – (Kings Park and Flatbush, Brooklyn) – Counties of Kings, Queens, Nassau and Suffolk.

11, 12. Manhattan State Hospital – (Manhattan and Central Islip) – Counties of New York and Richmond.

13. Gowanda State Homoeopathic Hospital (Collin’s Farm) – Counties of Cattaraugus, Chautauqua and Wyoming.

Additional State Hospitals:

14. Pilgrim State Hospital – Brentwood, Suffolk County, New York

15. Mohansic State Hospital – Yorktown, Westchester County, New York

State Hospitals for the Criminally Insane:

16, 17. Mattaewan and Dannemora State Hospitals

 

Washington State – Grave Concerns Association Model of Memorialization

For the past few years I have tried to get the attention of state and federal lawmakers to pass a law in New York State that would provide for the release of patient names; dates of birth and death; and location of graves, of people who were committed to State Hospitals and Custodial Institutions during the nineteenth and early twentieth centuries who were buried in unmarked or numbered, anonymous graves, whether they be in formerly state, county, or city owned cemeteries. (See My Story) I also asked for a searchable, digital database, available to the public to be included in the bill. On August 22, 2011, I finally got the opportunity to meet with Kate Munzinger, Senator Joseph Robach’s Chief of Staff. Ms. Munzinger took the time to listen to what I was asking for.

Grave Concerns Association

Grave Concerns Association

The reason why I’m blogging about this issue again is because the bill in New York State has not yet become a law. There are caring people in several states who are pushing to get a similar law passed but state and federal representatives will not give them the time of day or they won’t even consider passing such a law because of the misinterpretation of the federal HIPAA Law. I want to help those people in other states by sharing with them what was shared with me. If not for Laurel Lemke, Chair of Grave Concerns Association, I don’t think I would have received the attention of Senator Robach. In 2004, Ms. Lemke and others, had fought for this cause, and managed to amend law 6678 in the State of Washington that allowed for the release of patient names for the purpose of memorialization. She emailed me the bill which I in turn gave to Kate Munzinger, Chief of Staff; Tim Ragazzo, Director of Operations & Legislation; and Senator Joseph Robach. A bill was drafted and introduced to the New York State Legislature in March 2012. The title of the bill is: “An act to amend the mental hygiene law, in relation to patients interred at state mental health hospital cemeteries.”

Western State Hospital, Pierce County, Washington, has 3,218 patients who are no longer anonymous. Grave Concerns Association has raised funds and replaced 1,200 names since 2004. The forgotten have been remembered with dignity. With community fund raising efforts and countless volunteers, inscribed headstones that identify the patient’s name, date of birth and death, have been placed at the graves; and a searchable, digital database has been uploaded to the internet. In contrast, New York State, with 22 or more former state custodial institutions combined has upwards of 11,000 or more people buried in anonymous graves who through no fault of their own have been erased from history. Willard State Hospital alone has close to 6,000 patients buried in anonymous graves.

Sherry Storms, Stacie Larson and Laurel Lemke, Grave Concerns Association, John Lucas, countless volunteers, and the State of Washington deserve to be recognized for their ground breaking, painstaking work, and above all, their model should be copied in every state in the union. The New York State bill is important and necessary in order to restore the dignity and personhood of the thousands of people who were incarcerated and died at former New York State Insane Asylums (later renamed State Hospitals), and State Custodial Institutions (for Feeble-Minded and Epileptic persons). When the bodies of the inmates were not claimed by family members, they were buried in anonymous, unmarked graves. Many of these unclaimed bodies went to medical colleges and pathology labs for the furtherance of medical science. These people deserve to be remembered, and we need to remember what happened to them so that we do not repeat the mistakes of our ancestors.

It is my hope that the State of New York, and all states, will pass similar legislation and follow the Washington State – Grave Concerns Model. They have done a great service for the community and the nation by naming the forgotten; setting up an exemplary, searchable, digital database; and trying their best to remove the stigma of mental illness.

WASHINGTON:
Grave Concerns Association
Volunteer Carla Wutz, descendent of Michael Wutz, updates the data base on the Grave Concerns website.

Grave Concerns Cemetery Database – Version 1.0 – Western State Hospital Historic PatientCemetery
http://www.wshgraveconcerns.org/search-the-database.html

Washington State Archives – Digital Archives

My Story by L.S. Stuhler – July 23, 2012

Featured

I include here my story about trying to obtain my great-grandmother’s medical records and photographs from the Willard State Hospital, along with asking for the release to the public of former patient names; dates of birth and death; and location of graves, in order that these forgotten people, of which there are thousands, may be honored and remembered with dignity. It all began on February 24, 2001, when I found my great-grandmother’s obituary: According to the “PennYan Democrat” newspaper dated August 17, 1928: “PUTNAM, At the State Hospital in Willard, Monday, August 13, 1928, Mrs. Margaret Putnam, aged 76 years. She is survived by one son, Jarvis Putnam, of PennYan. The funeral was held from the Thayer Funeral Home Wednesday afternoon, Rev. W.A. Hendricks officiating. Burial in Lake View cemetery.” 

It took a long time for me to figure out where I should be looking in order to obtain information about my great-grandmother. In 2001, I was unable to find anything on the internet pertaining to this issue which is the main reason I created this blog (July 10, 2011) and wrote the book The Inmates of Willard 1870 to 1900, A Genealogy Resource (December 17, 2011). In 2007, I came across an article about a new book written by Darby Penney, MLS, and Peter Stastney, M.D., entitled The Lives They Left Behind Suitcases From A State Hospital Attic. Wondering if my great-grandmother’s suitcase was among the 400 discovered in an attic of the Willard State Hospital, I contacted Ms. Penney. Unfortunately, it was not among the surviving suitcases. Ms. Penney’s book revealed the practice of burying “mental patients” in anonymous graves. I must admit that I had never heard of this practice before and thought it was extremely cruel. What amazed me most was that no one (that I knew of) had ever tried to rectify this sad, dehumanizing situation. What needs to be acknowledged is none of these well documented facts about the thousands of people buried in anonymous graves at Willard, and all former NYS Hospitals and Custodial Institutions, would ever have come to light without the tireless efforts of Ms. Penney, Dr. Stastney, and Mr. Craig Williams, Curator of History at the New York State Museum at Albany. I also need to thank Laurel Lemke, from the Grave Concerns Association, for sending me the law that she helped to pass in the State of Washington in 2004. Without her help in emailing me the bill, I never would have gotten the attention of Kate Munzinger, Senator Joseph Robach’s Chief of Staff. I met with Ms. Munzinger on August 22, 2011. Senator Robach introduced the bill to the New York State Senate in March 2012.

The following response letters, beginning in early 2008, are from everyone that I have contacted over the years. I have not included emails. Unless a modification is made to the present HIPAA Law and New York State Mental Hygiene Laws (See New HIPAA Update and S2514-2013), I and so many others like me, who want to know why our ancestor was committed to a state hospital, will never know the answer. My first response letter is dated April 16, 2008, in response to the original paperwork that my physician and I had sent in early September of 2007 (seven month wait). On August 13, 2008, I was denied a copy of my great-grandmother’s medical records and photographs from the Greater Binghamton Health Center. This three sentence response letter is the explanation given to me after waiting four months, taking the time and effort to speak with them on the phone, obtaining and filling out their required paper work with the help of my physician, and sending in the forms.

1- GBHC 04.16.2008

1- GBHC 04.16.2008

2 - GBHC 08.13.2008

2 – GBHC 08.13.2008

Besides writing a letter to former New York State Governor Patterson and present Governor Cuomo, both U.S. Senators from New York: Schumer and Gillibrand, State Senators, Congressmen, The Department of Correctional Services, The Commission on Quality of Care and Advocacy for Persons with Disabilities, The Office of Mental Health Counsel, and the State of New York Department of State Committee on Open Government (FOIL), I also wrote a letter to the doctor in charge of the Office of Mental Health Institutional Review Board asking permission to view, record, and publish the burial ledgers – names; dates of birth and death; and location of graves) located and stored at the NYS Archives. After waiting seven months for a response, I was told in an official letter, that my proposed study was not approved due to concerns about violating patient confidentiality. I was also told that I could take the New York State Office of Mental Health to court in order to get the names of former patients and the medical records of my great-grandmother, but seriously, who has the time and the money to go through all of that? Privacy ends at death but apparently patient confidentiality lasts forever.

I went through proper channels to obtain Maggie’s medical records and photographs. I filled out the paperwork, had my doctor and a witness sign the paperwork, and my doctor sent it in. I waited four months for a response and finally my doctor received a letter. I asked for the medical records and any photographs of my great-grandmother. When I received the response from the Greater Binghamton Health Center in August 2008, it stated the staff was unable to locate the requested file. Had I received my great-grandmother’s medical records, I would have been satisfied. Besides being genuinely interested in learning more about Willard, I created this blog for family genealogists like me, frustrated trying to find out if and when their ancestor was a Willard inmate, receiving the runaround obtaining their ancestor’s medical records and photos, and determining whether their ancestor is buried in the Willard Cemetery. The final answer came from the Commissioner of the NYS Office of Mental Health in responding to my inquiry by e-mail on October 25, 2010, which basically stated that publicly identifying former patients may be offensive to some families because of the stigma and repercussions that may follow, for example, in some small towns. I must say that I took offense to his statement because I live in a small town. What exactly was he trying to imply? It appears that we have not moved any further in our tolerance or understanding of people with problems and of people who live in small towns. I must say that my favorite letter is from the Commissioner, dated June 3, 2011, in which he reminds me “that the penalties for violations are very stiff – civil penalties under federal law can carry up to $10,000 per violation.”

Willard’s inmates who in life were incarcerated, forgotten, warehoused, and controlled by the state are once again controlled and intentionally forgotten in death by New York State, the New York State Office of Mental Health, or both. Perhaps they are interpreting the scope of the HIPAA Law incorrectly. The only logical assumption is the protection provided by these laws is not for long dead souls since U.S. Federal Censuses already reveal many of their names; it is for the protection of the descendants.

The responses from the Senators are interesting because they state that there is nothing they can do about the situation at Willard. They mention nothing about modifying the HIPAA Law which was one of the questions that I asked them to respond to. My understanding is that they are the only ones who can change or modify this federal law in order that descendants or anyone for that matter, would be allowed to have a copy of these historical medical records. When you’re dead, you’re dead. Who cares if someone looks at 80 year old medical records? The following letters were received by me from Senator Charles E. Schumer, dated January 9, 2012; and from Senator Kirsten E. Gillibrand, dated February 21, 2012. Perhaps this whole ridiculous situation of trying to uncover the identities and opening medical records of people who have been dead for one hundred years lies with the unique interpretation of the federal HIPAA Law by each individual state office of mental health.

Response Letter Senator Schumer 1.9.2012

Response Letter Senator Schumer 1.9.2012

Response Letter Senator Gillibrand 2.21.2012

Response Letter Senator Gillibrand 2.21.2012

14 - OMH 06.03.2011

14 – OMH 06.03.2011

13 - GBHC 09.07.2010

13 – GBHC 09.07.2010

11 - FOIL 06.04.2010-1

11 – FOIL 06.04.2010-1

12 - FOIL 06.04.2010-2

12 – FOIL 06.04.2010-2

10 - Correctional Services 01.15.2010

10 – Correctional Services 01.15.2010

7 - FOIL 12.10.2009-1

7 – FOIL 12.10.2009-1

8 - FOIL 12.10.2009-2

8 – FOIL 12.10.2009-2

9 - FOIL 12.10.2009-3

9 – FOIL 12.10.2009-3

5 - FOIL 09.25.2009-1

5 – FOIL 09.25.2009-1

6 - FOIL 09.25.2009-2

6 – FOIL 09.25.2009-2

4 - OMH Counsel 09.08.2009

4 – OMH Counsel 09.08.2009

3 - Quality Care Advocacy 09.01.2009

3 – Quality Care Advocacy 09.01.2009

The Willard and Rochester State Hospital Connection

“The raving maniac, the young child, the infirm old man, and the seducer’s victim, were crowded in a building whose remembrance must seem painful.”
– W. H. McIntosh, History of Monroe County, New York

To the west of the entrance of the Vietnam Veterans Memorial of Greater Rochester in Highland Park (1440 South Avenue, Rochester, NY) stand three cream colored wooden arbors with benches, a lovely brick patio, and a small garden. This site, now known as The Remember Garden, marks the old burial ground that was used to bury paupers and criminals in unmarked, anonymous graves during the nineteenth century. In July 1984, approximately 900 human remains were discovered in this unmarked cemetery which was located behind the old Penitentiary. The bodies are believed to be the inmates who lived and died at the Work House (Penitentiary), Alms House, and the Insane Asylum between 1826 and 1863. 284 to 305 remains were re-interred in Mount Hope Cemetery in 1985. The memorial that marks the location of the cemetery in Highland Park was dedicated in May 2009, and the memorial to mark the re-interred remains at Mount Hope Cemetery may be dedicated in the spring of 2012. See 1872 “Bone Yard” The Remember Garden.

Remember Garden, Highland Park

Remember Garden, Highland Park

It is indeed unfortunate that thousands of poor “sane” men, women, and children, who lived and died in the county poor houses and other charitable institutions of our country, were buried in anonymous, unmarked graves; but their final resting places can be marked with engraved headstones. The same rule does not apply for those who were labeled as “insane” which also includes people who were diagnosed with epilepsy. It is virtually impossible for family researchers to obtain the medical records of their ancestors who were incarcerated at these long closed insane asylums because of the federal HIPAA Law which states, The Office for Civil Rights enforces the HIPAA Privacy Rule, which protects the privacy of individually identifiable health information; the HIPAA Security Rule, which sets national standards for the security of electronic protected health information; and the confidentiality provisions of the Patient Safety Rule, which protect identifiable information being used to analyze patient safety events and improve patient safety.” This rule has also been applied to burial ledgers and death records of former NYS Hospitals and Custodial Institutions. Everyone has been forced to sign HIPAA documents at their doctor’s office. Most people interpret this law as one that applies to the living, not the dead. An individual’s right to privacy ends at death but the right of patient confidentiality apparently lasts forever. What is even more confusing is that a few states have interpreted this federal law differently than New York State. SEE NEW HIPAA UPDATE!

Monroe County Poor House & Rochester State Hospital

Monroe County Poor House & Rochester State Hospital

Washington, Oregon, Massachusetts, and Minnesota have allowed the release of the names of former psychiatric patients buried in anonymous, unmarked graves to the public. In some cases, these states have provided funds for cemetery restoration and engraved headstones. One would presume that if other states have released the names of patients, then New York State should be allowed to do the same. To deny our ancestors this simple remembrance, for all eternity, on the grounds that they were unfortunately and unnecessarily labeled as mentally ill, is unconscionable. The people of the state and the country have a right to know where their ancestors are buried; and the patients should have the right to be remembered with dignity.

Bill S2514 has been introduced to the New York State Legislature by Senator Joseph E. Robach. Let’s keep our fingers crossed that this bill becomes a law.

So, what does Willard State Hospital have to do with Rochester State Hospital? (The main building of the Willard State Hospital was demolished in 1984/85. Some of the buildings currently belong to the NYS Prison System / Willard Drug Treatment Facility).

The Willard Act of 1865 was “An Act to authorize the establishment of a State asylum for the chronic insane, and for the better care of the insane poor, to be known as The Willard Asylum for the Insane.” This law introduced a new policy that “was to relieve the county of their care and devolve it upon the State through the ‘Willard,’ and the State Lunatic Asylum at Utica.” Willard opened its doors on October 13, 1869. From the beginning New York and Kings Counties were exempt from this law; Monroe County quickly followed. “An Act In Relation To The Chronic Pauper Insane” was passed on April 25, 1871. The board of State Commissioners of Public Charities was authorized to hear and determine all applications by the county superintendents of the poor of the counties of New York State. On written application the several counties had to prove to the Legislature that “the buildings and means employed to take care of the chronic pauper insane of such county are sufficient and proper for the time being for such purpose.” Monroe County was exempted from sending their pauper chronic insane to the Willard Asylum about the year 1872.

Willard State Hospital, Main Building, circa 1898.

Willard State Hospital, Main Building, circa 1898.

The Willard Asylum was unique because it was created to end the poor house system of caring for the insane. From 1869 to 1890, an inmate once committed to the facility, was prohibited from being returned to the county poor house unless the county was exempted, or the county did not want that particular patient returned. Willard provided a permanent home for the pauper chronic insane or “incurables” of the state. The term chronic refers to an individual who suffered from insanity for more than one year. Counties that were not exempt from the law were responsible for transporting their pauper chronic insane to Willard and paying the cost of the patients’ care, maintenance, and clothing. Willard was located in the towns of Ovid and Romulus, Seneca County, New York, on the shores of Seneca Lake and is roughly 80 miles from Rochester.

According to The Proceedings of the Board of Supervisors of the County of Monroe, 1871, the only patient who was sent to The Willard Asylum for the Insane by the County of Monroe was Francis J. O’Brien, at the yearly cost of $129.00. The U.S. Federal Census of 1870, which is the first census of the Willard Asylum, shows that Mr. O’Brien was 29 at his last birthday; male; white; born in the state of Michigan; insane. In 1880, he is listed as: 40 years old; married; occupation, physician; born in the state of Michigan; insane; living in the North wing of the main asylum building. The 1880 U.S. Federal Census Schedules of Defective, Dependent, and Delinquent Classes lists him as: residence when at home, Rochester, Monroe; form of disease, Chronic Mania; duration of present attack, 13 years; total number of attacks, 1; age at which first attack occurred, 27; what has been the total length of time spent by him (or her) during life in such asylums, 11 years. In 1900, he is listed as 60 years old; inmate, white; male; married; born in Michigan. His name does not appear on the 1910 Federal Census. Mr. O’Brien died between 1900 and 1910 and spent at least 31 years of his life locked up at Willard as did thousands of New Yorker’s during the last two centuries. We will never know how or when he died, or where he was buried unless current law changes.

The State Care Act passed in 1890. It was An Act to promote the care and curative treatment of the pauper and indigent insane in the counties of this state, except New York, Kings and Monroe counties, and to permit said excepted counties or either of them, in accordance with the action of their respective local authorities, to avail themselves or any one or more of them, of the provisions of this act.The State Commission in Lunacy was given the power to divide the State into hospital districts and dropped the distinction between acute and chronic asylums. This law also renamed state insane asylums to state hospitals. Willard was no longer an asylum for the chronic insane only and was renamed Willard State Hospital which served the counties of Allegany, Cayuga, Genesee, Ontario, Orleans, Schuyler, Seneca, Steuben, Tompkins, Wayne and Yates. The Monroe County Insane Asylum was renamed Rochester State Hospital and served the counties of Monroe and Livingston. On July 1, 1891, Monroe County came into the state system and the asylum was purchased by the state. The New York State poor house system of caring for the insane ceased to exist October 1, 1893, when the State Care system went into effect.

The commonalities of the Willard Asylum for the Insane and The Monroe County Alms House, were they both shared the same architect; Mr. John Rochester Thomas, born on June 18, 1848, at Rochester, New York. According to W. H. McIntosh in his book History of Monroe County, New York: “John R. Thomas, one of our most enterprising young architects, commenced the practice of his profession here in the year 1866, and now ranks with the leading architects of the country. Mr. Thomas has during the past ten years accomplished a very large amount of work. He introduced the Mansard roof, which was first applied to private dwellings. Mr. Thomas has made a specialty of the study of Gothic art, believing it will be the architecture of the future in this country. He has also designed largely for private dwellings in the city and adjoining country, among which is the residence of H. A. De Land, of Fairport, one of the most elegant and costly private residences in western New York. He also designed Rochester Theological Seminary buildings, Sibley Hall, on the University grounds, the Opera House, the Monroe County almshouse, the University of Virginia, at Charlottesville,Virginia, and the New York State Reformatory buildings, at Elmira. In the year 1874, Mr. Thomas received a very honorable appointment from Governor Dix as one of the State architects, and was assigned at once to the charge of the Reformatory at Elmira, which position he now holds.” (1) The choice of Dr. John B. Chapin, first Superintendent of The Willard Asylum for the Insane, choosing Mr. Thomas as the architect of The Willard Asylum for the Insane caused a great deal of controversy in New York State because at the time he was not yet a state architect. The “Mansard” or French roof is prominent in many of Mr. Thomas’s architectural designs.

The differences between Willard and Rochester State Hospitals, was that Willard had its own twenty-five acre cemetery located about a mile down the road from the facility which contains the remains of 5,776 patients buried in anonymous, unmarked graves. The Rochester State Hospital used Mount Hope Cemetery to bury its inmates. I spoke to a very knowledgeable gentleman from the Rochester Office of Mental Health who stated that the address of the Rochester State Hospital was 1600 South Avenue. He said the facility was torn down in the 1960s to make way for the Al Sigl Center. The address of the Al Sigl Center was given a new address by the U.S. Postal Service: 1000 Elmwood Avenue (corner of South Avenue). In the past, I have searched the Mount Hope Cemetery Records looking for family members and had often seen “1600 South Avenue” given as the residence for many people. I always wondered what it was and on occasion I had Googled the address but received no hits. Now I know why, the address no longer exists.

I have transcribed the earliest records: Names: Monroe County Poorhouse, Asylum, Penitentiary, Other Charities 1838 to 1860. If you believe that your ancestor was an inmate who lived and died at The Monroe County Insane Asylum / Rochester State Hospital you can search for them at the Rochester – Mt. Hope Cemetery Records online. Here is a brief description of what you will see if you decide to search the records for yourself: Under the heading “Residence,” a street name will be given with no specific address; or it will list the place where the person died such as: Insane Asylum, Asylum, County House, Jail, etc. (Be aware that there was an Asylum Street in the City of Rochester that as far as I know, had no connection with the Monroe County Insane Asylum). About 1891, you will start to see the words “Rochester State Hospital” under “Residence.” At some point in the 1900s, instead of listing the place of death as Rochester State Hospital the address has been given instead as “1600 South Avenue.” In some instances, the family of the deceased claimed the body and buried them in the family plot. In the case of pauper and indigent insane, the hospital buried them in unmarked, anonymous graves at Mount Hope Cemetery. Some unclaimed bodies were donated by state hospitals to state medical colleges for the advancement of medical science in which case no grave will be found.

At the very least, the location of these graves should be marked in Mount Hope Cemetery with a memorial indicating the final resting place of the patients of The Monroe County Insane Asylum and Rochester State Hospital. Providing individual, engraved markers would be ideal but without the actual death records this will not be possible. The Rochester State Hospital burial records do exist and should be released to the public, along with all former state hospital burial ledgers in a unified, digital, database in order that descendants and caring citizens can find their ancestors and mark the graves of these forgotten souls if they wish to do so. Hopefully, a new bill introduced into the New York State Legislature by Senator Joseph E. Robach will allow the release of the names of these people who have remained anonymous for over one hundred years. I would like to thank Senator Robach and his staff for writing and sponsoring the bill.

As a life-long Rochester area resident, I am proud to live in a community that has provided so many genealogical resources. I am truly grateful for The Friends of Mount Hope Cemetery who have taken the time and effort to assist me on more than one occasion. A few years ago, volunteer Frank Gillespie, who recently passed away in January 2012, helped me locate my great-grandparents’ grave by providing a map and directions. Marilyn Nolte, President of The Friends of Mount Hope Cemetery, has located the section where many of the Rochester State Hospital patients are buried, and she patiently answered numerous questions regarding the older sections of the cemetery, unmarked graves, and the responsibilities of plot owners. I thank them for their dedication, knowledge, and help.

(1) SOURCE: McIntosh, W. H., History of Monroe County, New York; With Illustrations Descriptive Of Its Scenery, Palatial Residences, Public Buildings, Fine Blocks, and Important Manufactories, From Original Sketches By Artists Of The Highest Ability.Philadelphia: Everts, Ensign & Everts, 716 Filbert Street, 1877, Page 142.

S6805-2011 – S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate

NEW! UPDATED BILL: S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

S6805-2011 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

A10636-2011 – NY Assembly Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Assembly.

Imagine not being remembered in death because in life you were diagnosed with diabetes, heart disease or cancer. Most people would find this kind of treatment cruel and inhumane but it exists to this day for people who were diagnosed with a mental illness or developmental disability during the nineteenth and early twentieth centuries. This bill is important and necessary in order to restore the dignity and personhood of the thousands of people who were incarcerated and died at former New York State Insane Asylums and Custodial Institutions. When the bodies of the inmates were not claimed by family members, they were buried in anonymous, unmarked graves. They deserve to have their names remembered and available to the public in a searchable database.

The list of these former New York State Hospitals includes but is not limited to: BinghamtonBuffaloCentral IslipCreedmoorDannemoraEdgewoodGowandaHudson RiverKings ParkLong IslandManhattanMatteawanMiddletownMohansicPilgrimRochesterSt. LawrenceSyracuseUtica, and Willard

The Feeble-Minded (Intellectual Disabilities) and Epileptic Custodial Institutions of New York includes but is not limited to: Craig Colony for EpilepticsLetchworth Village for Epileptics & Intellectually DisabledNewark State School for Intellectually Disabled WomenRome State School for Intellectually Disabled Adults & Children, and Syracuse State School for Intellectually Disabled Children. There may be more.

There is no good reason why these long deceased souls need to be punished and stigmatized in death for an illness or disability that they lived with in life. The great majority of these former state hospitals closed in favor of smaller group home settings or changed their names to Psychiatric Centers about 1974. The cemeteries that belonged to these institutions are inactive. I do not understand why anyone would need to have their name withheld from any list until 50 years had passed after their death. This requirement in the bill only serves to feed the stigma. Let’s hope that even with this flaw, it becomes law.

Photo by Roger Luther at www.nysAsylum.com

Photo by Roger Luther at http://www.nysAsylum.com

The Willard Cemetery - Veterans

Veteran’s Graves 5.14.2011

Willard Cemetery 1 - 5.14.2011

Willard Cemetery 5.14.2011

Sally Green’s Anonymous Burial, Rochester, NY

I am writing this post in response to the story in the Rochester, NY, Democrat and Chronicle, of the anonymous burial of Sally Green, a woman who lived with a mental illness and somehow slipped through the cracks never receiving the help or care that she needed. What is most disturbing to me is the fact that her family was not notified of her death until she had been dead and buried for three weeks in a cardboard coffin (with or without a vault), in an anonymous, unmarked grave. In my opinion, the reason why this poor woman was buried in an anonymous grave wasn’t because her family didn’t care about her; it was due to the fact that she had mental health issues. The big questions in my mind are: why didn’t anyone take the time to locate her family, and who else is buried in this anonymous section of this public cemetery?

Sally Green Coffin - Tina Yee Photographer

Sally Green Coffin – Tina Yee Photographer

During the nineteenth and twentieth centuries, state “insane” asylums and hospitals, including the former Monroe County Insane Asylum later renamed Rochester State Hospital, buried thousands of patients in anonymous, unmarked graves. I was not aware that this practice was still in use. Who knows if the families of these patients were ever told what became of them. Most people are not aware that in the state of New York the unmarked, anonymous graves of the “mentally ill” located in former NYS Hospital cemeteries and public cemeteries such as Mount Hope Cemetery (Rochester, NY), cannot be marked with an engraved headstone and their names cannot be made public because of the interpretation of federal HIPAA Law by the NYS Office of Mental Health. To deny our ancestors and the recently deceased this simple remembrance, for all eternity, on the grounds that they were diagnosed with a mental illness, and, therefore, by law, they are not permitted to be remembered, is unconscionable.

Everyone should be remembered with dignity. I wonder if the public will be given an explanation as to why no one took the time to find out if Sally Anne had a family? These actions are dehumanizing, insulting and simply unacceptable.

Family Never Told Of Sally Green’s Death, Burial – Democrat & Chronicle 2.18.2012.
“Trudging through the wet grass in Oatka Cemetery, mud and rainwater creeping up the sides of her jeans as tears dripped down her face, Cynthia Green finally cried out. “This is so stupid! I’m just trying to find my sister!” On Jan. 19, Sally Green died at Strong Memorial Hospital, and in an apparent series of missteps and miscommunications, no one told her son Derrick or any of her eight living siblings that she had died until long after she was buried. Family members finally learned of her passing last week, and, seeking answers, they say they were repeatedly spurned by officials, none of whom were willing to claim responsibility for the mishap. When they finally visited the small section of Oatka Cemetery reserved for indigent burials — home to about 300 others that the county has had buried there over the past six years — they searched for her resting place for more than half an hour. Sally Green’s was one of the many unmarked graves, so the family eventually had to ask for assistance from the cemetery caretaker, who pointed them to the right spot: a flat pile of mud unmarked by anything other than a small yellow rock. They said a prayer as they gathered around the burial site, where beneath their feet, the body of their mother and sister lay in a coffin that was little more than a glorified cardboard box marked “Handle with care.” “Can you imagine someone in your family getting buried without notifying you, and then you find out a month later?” said Derrick Green. “All of this is just crazy. Mentally, I’m so drained right now. I just don’t want this to happen to no one else.”

A Troubled Life
Afflicted with a mental illness, Sally Green had been drifting for the past several years, said her sister Cynthia Green. She was in and out of homeless shelters, and a drinking problem led to numerous hospitalizations. She was found on the morning of Jan. 19 in a room at the Cadillac Hotel, where she’d been staying for the previous two weeks, and was pronounced dead at Strong at 10:07 p.m. She was 57. But family members say that no one at the hospital called them, nor did anyone at the Monroe County Public Administrator’s Office, which is tasked with tracking down surviving family members and preparing funeral arrangements if no family is located. In the case of Sally Green, this shouldn’t have been difficult. Her son, as well as six of her eight living siblings, lives in the Rochester area. She has numerous cousins in Rochester as well, four of whom work for the Rochester Police Department. Additionally, she always carried identification and an address book with her, but officials never showed up at the Cadillac Hotel to search her belongings, said Tina Spence, the hotel’s front desk clerk. “They could have easily found where I was at,” said Derrick Green, 42, of Rochester. The family now wants the county to pay to have the body exhumed so they can conduct their own funeral and bury Sally Green next to her mother, Cora Green. “My mom is not resting well right now,” said Derrick Green. “This way, at least we could say goodbye to her in the right kind of way.” They’d also like a better explanation as to the cause of her death. To date, the family has no insight into how she died other than a three-word description on the death certificate: “acute myocardial infarction” — or a heart attack, in common terms. On Friday, officials at Strong Memorial Hospital called the family and set up a meeting to explain the cause of her death further, said Derrick Green. Social workers at the hospital attempted to locate relatives on the day Sally Green was admitted but were unable to find any, said Teri D’Agostino, spokesperson for Strong Memorial Hospital. When Green died, the hospital turned the case over to the public administrator, Frank Iacovangelo, said D’Agostino. Iacovangelo’s firm, Gallo & Iacovangelo, did not return a call seeking comment. Monroe County also did not return a call seeking comment.

Fourth Of 10 Siblings
Born to Miles and Cora Green, Sally Green was the fourth of 10 siblings. As a youth, she would often wait until her mother fell asleep clutching her baby sister Cynthia before sneaking over and bringing the baby into her own bed to hold. She grew to be a caring girl with a sarcastic sense of humor and a penchant for taking baths — sometimes more than once a day, said her sister Linda Cloud. She had Derrick when she was 15 years old, but several years later, she began showing signs of mental illness. Unable to care for her son, she gave him up for adoption, but he returned to the family and reunited with his mother when he was 16, family members said. Later in her life, with her mental illness compounded by alcohol abuse, she often found herself staying at the House of Mercy, a homeless shelter in Rochester. There, she became affectionately known as the “lipstick bandit,” because she would often spread lipstick beyond the reaches of her lips and up the sides of her cheeks, said Cynthia Green. In recent months, she lived with her son and called him regularly when he wasn’t home. “I used to be like ‘Why are you calling me so much?'” said Derrick Green. “But thinking of it now, I think she wanted to be around me because she knew her days were coming to an end.” She moved into the Cadillac Hotel on Jan. 5, and her son was helping her find an apartment of her own, he said. Though she stayed there for only two weeks prior to her death, she endeared herself to the staff, thanks to her bright orange hat and affinity for burnt popcorn. On Jan. 29, two days after her burial, a one-line obituary ran in the Democrat and Chronicle, but several more days would pass before family members learned of her death. She is predeceased by her brother Gary, and survived by her son Derrick; her brother Miles; her sisters Gloria, Cora, Joyce, Cynthia, Clara Ingram, Mildred Gibson and Linda Cloud; and many other relatives. Derrick Green said he’s had trouble eating, sleeping, and working since his mother died. “I only have one mother,” he said, “and I want someone to be liable for what they have done.” SDOBBIN@DemocratandChronicle.com & Twitter: @Sean_Dobbin

Monroe County Public Administrator Reveals New Protocol For Finding Next Of Kin, Changes Made In Response To Sally Green Case – David Andreatta – Democrat & Chronicle 4.26.2012
“The circumstances that led to Sally Green being buried in a pauper’s grave unbeknownst to her family were “unusual and exceptional,” the Monroe County public administrator, who authorized the burial, wrote to the Monroe County Legislature in a letter dated this week. The public administrator, Frank Iacovangelo, wrote in response to legislators who questioned his protocol for locating next of kin following Democrat and Chronicle reports of Green’s burial and subsequent exhumation from Oatka Cemetery in Scottsville. Iacovangelo paid to have Green reburied at Mt. Hope Cemetery. A private lawyer under contract with the county, Iacovangelo wrote that the incident prompted a “thorough review” of his office’s protocol and “resulted in an enhancement of office procedures to prevent any recurrence of burial without family notification and approval.” The letter, dated April 23 and to which new procedures were appended, marked the first time he has publicly revealed the extent of the changes and said the Green situation was unique. “Up until (Green’s burial in) February of this year, I have never had a situation arise where I was unable to find a relative willing to act (on behalf of the deceased) when such a person actually existed,” the letter read. The matter of Green, who had drifted in and out of homelessness and was estranged from her family when she died in January, turned a spotlight on taxpayer-funded indigent burials and the function of the public administrator, who is charged with handling the estates of the poor and people who die without a will or executor. Much of the new protocol reads like a list of common sense steps one might take to track down relatives of people disconnected from society.” DANDREAT@DemocratandChronicle.com
http://twitter.com/dandreattaDandC

 

1901 New York State Hospitals

1901 LIST OF STATE HOSPITALS

By 1901, there were thirteen state hospitals for the insane in the State of New York. All these hospitals buried their dead in anonymous, unmarked graves. Some had their own cemetery like Willard State Hospital; others used city and county cemeteries like Rochester State Hospital. Most of these state hospital cemeteries are unmarked, unkempt, and forgotten. None of the thousands of former psychiatric patients’ names have been released to the public. Considering that in 1870, the first patient was buried in the Willard Cemetery, which in the year 2012 covers a span of five or six generations, these people have waited long enough to be remembered. When you release the names, you remove the stigma. The following is a list of most of these long-closed state hospitals; there are more.

1. Utica State Hospital – Counties of Fulton, Hamilton, Herkimer, Montgomery, Oneida, Saratoga, Schenectady and Warren.

2. Hudson River State Hospital – Counties of Albany, Columbia, Dutchess, Greene, Putnam, Richmond, Rensselaer, Washington and Westchester.

3. Middletown State Hospital – Counties of Orange, Rockland, Sullivan and Ulster.

4. Buffalo State Hospital – Counties of Erie and Niagara.

5. Willard State Hospital – Counties of Allegany, Cayuga, Genesee, Ontario, Orleans, Schuyler, Seneca, Steuben, Tompkins, Wayne and Yates.

6. Binghamton State Hospital – Counties of Broome, Chemung, Chenango, Cortland, Delaware, Madison, Otsego, Schoharie and Tioga.

7. St. Lawrence State Hospital – Counties of Clinton, Essex, Franklin, Jefferson, Lewis, Onondaga,Oswego and St. Lawrence.

8. Rochester State Hospital – Counties of Monroe and Livingston.

9, 10. Long Island State Hospital – (Kings Park and Flatbush, Brooklyn) – Counties of Kings, Queens, Nassau and Suffolk.

11, 12. Manhattan State Hospital – (Manhattan and Central Islip) – Counties of New York and Richmond.

13. Gowanda State Homoeopathic Hospital (Collin’s Farm) – Counties of Cattaraugus, Chautauqua and Wyoming.

Additional State Hospitals:

14. Pilgrim State Hospital – Brentwood, Suffolk County, New York

15. Mohansic State Hospital – Yorktown, Westchester County, New York

State Hospitals for the Criminally Insane:

16, 17. Mattaewan and Dannemora State Hospitals

 

Paranormal State – The Ghosts of Willard Asylum

Paranormal State – The Asylum – Parts 1 & 2

I saw this episode of Paranormal State starring Ryan Buell, on A & E a few months ago, and since I am interested in the history of The Willard Asylum for the Insane (Willard State Hospital), I wanted to share it with you. Yes, I do believe that every person has a soul, and I do believe in the possibility that some souls may be stuck here on earth in a place where they don’t want to be, for whatever reason.

I wanted to share this episode because it shows a panoramic view of the Willard Cemetery which is a disturbing 25 acres of anonymous, unmarked graves; only the veteran’s graves are marked. The video also shows the original State Agricultural College Building which was turned into “The Branch,” and later renamed “The Grandview,” which held over 200 mild, insane, female patients (the basement of this building is shown quite a bit with its rounded, brick arches).

Willard was unique because it was built for the “pauper chronic insane” population of New York State and opened on October 13, 1869 (not 1866). Willard’s main building or “Chapin House,” named after Dr. John B. Chapin, the first physician superintendent of Willard, no longer stands as it was demolished around 1984/85. The group of red buildings with boarded up windows is one of four “cottage style” buildings that made Willard different from other state hospitals because they could segregate patients (over 200 patients in each group of 5 buildings), and expand the hospital in an economic (cheap) way to serve the needs of the state.

This cemetery has been blessed numerous times but the people who are buried there still remain anonymous.

Part One

Part Two

To learn more about The Willard Asylum for the Insane, buy my book:

The Inmates of Willard 1870 to 1900, A Genealogy Resource

The Inmates Of Willard 1870 to 1900 / A Genealogy Resource

The Inmates Of Willard 1870 to 1900 / A Genealogy Resource

Anonymous Graves In New York

It is indeed unfortunate that thousands of poor “sane” men, women, and children who lived and died in the county poor houses and other charitable institutions of our country were buried in unmarked, anonymous graves, but their final resting places can be marked with an engraved headstone. The same rule does not apply for those who were labeled “insane.” It is frustrating for family researchers who are interested in obtaining information about their ancestors who were incarcerated at one of these long closed insane asylums because of the federal HIPAA Law which states, The Office for Civil Rights enforces the HIPAA Privacy Rule, which protects the privacy of individually identifiable health information; the HIPAA Security Rule, which sets national standards for the security of electronic protected health information; and the confidentiality provisions of the Patient Safety Rule, which protect identifiable information being used to analyze patient safety events and improve patient safety.” Everyone has been forced to sign HIPAA documents at their doctor’s office. Most people interpret this law as one that applies to living individuals, not to people who have been dead for over one hundred years. What is even more confusing is that a few states have interpreted the law differently than New York State. NEW HIPAA Update 2013.

The Inmates of Willard, as well as all former inmates of New York State Hospitals, deserve a cemetery that is clearly marked with a dignified, cemetery appropriate sign. It should be well maintained and treated with respect like any other cemetery as a place where descendants and friends gather to pay respects, lay flowers, or meditate in silence. Some states have released the names of former patients buried in anonymous graves at these long-closed, state owned mental institutions, and they have allowed engraved headstones to be placed on the graves. In some cases, these states have provided funding for the headstones. It is my hope that the names of the patients buried in anonymous graves in cemeteries owned or formerly owned by the State of New York will be made available to the public in a unified, searchable, digital database. If these current laws are not modified, these people will forever remain forgotten and anonymous. After 143 years, the time has come to accept the mistakes of the past and turn a wrong into a right by releasing the names of the people buried at the Willard State Hospital Cemetery and all people buried anonymously in state mental institution cemeteries across America. They have waited long enough.

Thousands of people were incarcerated in state insane asylums during the nineteenth and early twentieth centuries. Anonymous burials are common for state mental institutions across New York State and the country. People genuinely do care and are interested in the way their ancestors were treated, how they died, and where they were buried.

Hopefully bill S2514-2013 will soon become a law and will include provisions for a searchable database available to the public. Interested people need to contact their New York State Senators and Assembly Persons to let them know that this bill needs to become a law so that these forgotten, anonymous souls will finally be remembered. 

The list of these former New York State Hospitals includes but is not limited to: BinghamtonBuffaloCentral IslipCreedmoorDannemoraEdgewoodGowandaHudson RiverKings ParkLong IslandManhattanMatteawanMiddletownMohansicPilgrimRochesterSt. LawrenceSyracuseUtica, and Willard

The Feeble-Minded (Intellectual Disabilities) and Epileptic Custodial Institutions of New York includes but is not limited to: Craig Colony for EpilepticsLetchworth Village for Epileptics & Intellectually DisabledNewark State School for Intellectually Disabled WomenRome State School for Intellectually Disabled Adults & Children, and Syracuse State School for Intellectually Disabled Children. There may be more.