THE BAD NEWS: Thousands Remain Nameless!

The New York State Office of Mental Health put on a fabulous “show” at the Willard State Hospital Cemetery on Saturday, May 16, 2015, by allowing ONE man, Lawrence Mocha, an inmate and hospital grave digger, who died 47 years ago, to be remembered with a beautiful ceremony that included a plaque displaying HIS NAME, DATE OF BIRTH, DATE OF DEATH, AND LOCATION OF GRAVE! OH MY GOD! IS HELL FREEZING OVER?

Plaque Honoring Lawrence Mocha

Plaque Honoring Lawrence Mocha

Mr. Mocha was ONE OUT OF 5,776 buried at this cemetery. This ceremony was hosted by the Willard Cemetery Memorial Project. The only reason that the OMH let this ceremony take place was because they were humiliated by an article published in The New York Times by journalist, Dan Barry. Why wasn’t Mr. Barry fined $10,000 by the OMH as they so often threaten? Might they be afraid of The Times and its readership of 1 million people a day?

It has been my belief that the New York State Legislature should pass into law two bills:

  1. New York State needs a law that would release the names, dates of birth and death, and location of graves of ALL deceased patients of ALL 21 former New York State Hospitals and 5 Custodial Institutions which SHOULD BE AVAILABLE AND ACCESSABLE ON THE OMH Website as a searchable data base. All these cemeteries are INACTIVE! There is no reason why anyone has to wait 50 years to be remembered!

AND

  1. An additional law that would release to descendants the medical records and photographs of loved ones who were incarcerated at these institutions 50 years after the patients’ death with the same wording as provided by the new Federal HIPAA legislation of March 2013.

The New York State Office of Mental Health WILL NOT ALLOW the burial ledger of the Willard State Hospital or any New York State Hospital or Custodial Institution to be released to the public. The names of the deceased and the location of their graves must be made available to the public in order that people may find their ancestor, visit the grave, and purchase a headstone if they wish to do so. Withholding their names is unacceptable, dehumanizing, and insulting; it only serves to feed the stigma associated with mental illness. Many of these former patients died over one hundred years ago; they are not under the care of the Office of Mental Health or any government agency. It is important and necessary for a new law in order to restore the dignity and personhood of the THOUSANDS of people who were incarcerated and died at former New York State Hospitals (formerly Insane Asylums), and Custodial Institutions. When the bodies of the inmates/patients were not claimed by family members, they were buried in anonymous, unmarked graves on state owned and county cemeteries. They deserve to have their names remembered and available to the public in a searchable database located at The New York State Office of Mental Health Website.

The NYS Office of Mental Health always sites “Protected Health Information” for their reason as to why they cannot release patient names. Let’s start at the beginning by defining the following: What Is Personal Identifiable Information? AND, What Is Protected Health Information? If you take the time to read these two definitions, you will CLEARLY SEE THAT THESE LAWS AND PROVISIONS WERE WRITTEN FOR THE LIVING, NOT FOR THOSE WHO HAVE BEEN DEAD LONGER THAN 50 YEARS!!!! A BURIAL PERMIT, which can be obtained in every County Clerk’s Office in the State of New York, is not covered under any state or federal privacy law. Old Books, Burial Ledgers, and The United States Federal and State Censuses which are released after 70 years, are not covered under any law that I know of. Birth, Death, and Marriage Certificates can be obtained from the NYS Vital Records page. 145 years have passed since the first person was buried at the Willard Asylum in 1870. It is time to let those nameless souls rest in peace and be remembered!

Anyone can sit at the County Clerk’s Office and sort through all the records pertaining to any state hospital or custodial institution but the information contained in the burial ledgers would be much more accurate and less time consuming. An inscribed headstone or a name on a searchable database would not positively identify a specific individual UNLESS it stated the city, county, state, country of origin, parents, spouses, sibling names, etc. And even then, you would have to claim that person as your ancestor and notify the media that he or she was diagnosed with a mental illness in order for you and your family to be “stigmatized.” Come On! This Is The Twenty-First Century! Privacy ends at death and according to the new HIPAA Law, Confidentiality Of Medical Records only lasts for 50 years after death of an individual.

The real reason why the OMH does not want to publish this information is simple. They don’t want you to know how badly they’ve screwed up!

EXAMPLES:
I have been told over and over again that one of the cemeteries on the former KINGS PARK STATE HOSPITAL property is being used as a youth baseball field. This had to have been approved by the NYSOMH. As far as I know, the bodies were never moved. I wonder how the families of patients buried at this site would feel if they knew that their loved one’s grave was being disrespected in this way? If this information is incorrect, I apologize.

What about all the VETERANS from the Civil War, WWI, WWII, Korea, and Viet Nam that are buried in these former NYS Hospital Cemeteries. Don’t they have a right to be remembered with a marker?

The NAMES of deceased patients buried at the former BINGHAMTON STATE HOSPITAL Cemetery are already online in a searchable database. The burial ledger was found in the trash. AND, in 2014, Glass Photo Negatives of Patients were discovered in a pile of pigeon poop at Binghamton’s Historic Asylum. If these old photographs and burial ledgers are so important, then why were they found in the trash?

At the former MIDDLETOWN HOMEOPATHIC STATE HOSPITAL patient records were left in boxes which were photographed and put on the internet. Looks like the staff left in a hurry! These facilities closed in 1995.

Someone from the former GOWANDA STATE HOSPITAL gave the burial ledger to The Museum of disABILITY History for safe keeping. Thank God! The names are on display at the museum.

Why is the largest mental health facility in New York State the Prison at Riker’s Island?

If medical records for the recently departed are protected, then why was Sally Green’s Anonymous Burial and a detailed story printed all over the news in February 2012?

Lastly, and most importantly, The OMH would have to release 21 State Hospital and 5 Custodial Institution Burial Ledgers. Do they even have them?

The list of these former New York State Hospitals includes but is not limited to: Binghamton, Buffalo, Central Islip, CreedmoorDannemora, EdgewoodGowanda, Hudson River, Kings Park, Long Island, Manhattan, Marcy, Matteawan, Middletown, Mohansic, Pilgrim, Rochester, St. Lawrence, SyracuseUtica, and Willard

The Feeble-Minded (Intellectual Disabilities) and Epileptic Custodial Institutions of New York includes but is not limited to: Craig Colony for Epileptics, Letchworth Village for Epileptics & Intellectually Disabled, Newark State School for Intellectually Disabled Women, Rome State School for Intellectually Disabled Adults & Children, and Syracuse State School for Intellectually Disabled Children.

Please check out and share the NAMES page.

More Reading:

Mental Illness & Ignorance

They’re Buried Where? May 24, 2013

Mental Illness & Prisons

My Story

THE GOOD NEWS: One Man Is Remembered!

On Saturday, May 16, 2015, LAWRENCE MOCHA was honored and remembered as a living, breathing, contributing member of society, 47 years after his death, with a lovely service and memorial. LAWRENCE was a patient at The WILLARD STATE HOSPITAL and served, unpaid, until the age of 90, as the gravedigger for the institution for thirty years. He dug 1,500 graves for his fellow patients, all of whom, with the exception of one other man, remain in anonymity. As you will see in the video below, it was a beautiful celebration of life that not only remembered with dignity and grace MR. MOCHA but all of the nearly 6,000 patients buried in anonymous graves at the 30 acre, WILLARD STATE HOSPITAL CEMETERY.

Lawrence Mocha

Lawrence Mocha

I was honored to be invited to this special event but I was unable to attend. I did however view the entire 55 minute video. I was so happy to see that so many people attended the celebration! I understand that there was quite a traffic jam and the State Police had to be called to divert people away from the WILLARD CAMPUS that held their annual tour and fundraising event for the Day Care Center. I hope in some small way I was able to help get the word out with my book and this blog about the dehumanizing, anonymous graves in former NEW YORK STATE HOSPITAL and CUSTODIAL INSTITUTION CEMETERIES.

Lawrence Mocha's Marker

Lawrence Mocha’s Marker

After viewing the video, there are a few thoughts I would like to share:

  1. The anonymous graves at WILLARD would never have been brought to light, and the suitcases found in the attic would never have been saved and preserved without the tireless work of CRAIG WILLIAMS, Curator of History at The New York State Museum at Albany.
  2. The Lives They Left Behind, Suitcases From A State Hospital Attic” written by DARBY PENNEY and PETER STASTNY, opened the eyes of the public and made us aware of what it was like to be institutionalized. This book inspired so many people, including me, to try to correct the disgrace of anonymous burials in former New York State Hospitals and Custodial Institutions. It led me to ask my State Senator, Joe Robach, to draft a bill concerning the release of patient names, dates of birth and death, and location of grave. Written in 2011 and first introduced to the New York State Senate on March 23, 2012 as S6805-2011, on January 13, 2013 as S2514-2013, and on January 7, 2015 as S840A-2015. As of today, it has not passed into law.
  3. In 2011, The Willard Cemetery Memorial Project was formed. God Bless all the volunteers who made this celebration possible!
  4. JOHN ALLEN, Special Assistant to the Commissioner of the New York State Office of Mental Health (518-473-6579), verified in his statements on the video exactly what I have been stating for years! Thank you, Mr. Allen! He told the story about how difficult it was to match A NAME, ANY NAME, with the correct family especially after multiple generations have passed since the ancestor’s death. He spoke about how problematic it was to find a living relative of the deceased buried in a numbered grave (which is exactly why the Federal HIPPA Law changed in March 2013). I know I’m going to hell for saying this, but it gave me great pleasure watching MR. ALLEN getting choked up as he told his story. Hopefully, he now knows what it feels like to search, and search, and search for a “long, lost relative” and finally finding them. MR. ALLEN also had a photograph of MR. MOCHA which he could show to a long, lost family member. Most of us don’t have that luxury even though photographs were taken of each patient. I would love to have a photograph of my great-mother. It’s simply outrageous that one government agency has the right to withhold the names, dates of birth and death, and location of graves of THOUSANDS!!! We’re not talking about medical records here, only the most basic of information concerning the death and final resting place of our loved ones who happened to live and die in a NEW YORK STATE HOSPITAL or CUSTODIAL INSTITUTION.
Plaque Honoring Lawrence Mocha

Plaque Honoring Lawrence Mocha

A NAME IS JUST A NAME AND MEANS NOTHING TO ANYONE UNLESS YOU’RE THE ONE SEARCHING FOR THAT LOVED ONE! It’s just a name that many other people share, it’s just a birth date, it’s just a death date. NO FAMILY WILL BE STIGMATIZED unless they are like me and tell the world that their great-grandmother lived and died at a state hospital. Remember that when WILLARD opened in 1869, that people were really poor, something that we have a hard time understanding today. Some families did not have the money to ship their relatives’ remains home. To believe that none of these people were loved and or missed is incorrect. To think that no one ever attended their burial or said a prayer for them is simply not true.

VIDEO: A MEMORIAL CELEBRATION FOR ALL THOSE INTERED AT WILLARD CEMETERY.

In case you didn’t catch the fifty-one names, beginning at minute 45, here they are.
I apologize in advance if I misspelled your loved ones’ name.
Do these names mean anything to you?

Names Of The Dearly Departed That Were Read In Public And Recorded On Video At: The Willard Memorial Celebration Saturday, May 16, 2015

1889
June 3 – Hannah Thompson
August 14 – Eliza Delaney
October 16 – Ida Bartholomew

1890
September 9 – James Foster
September 15 – Patrick McNamara
October 31 – Mary Champlain

1891
April 26 – Sophia Anderson
May 26 – Mary Brown
June 23 – Katherine Davis
November 16 – Lavinia Hayes

1892
January 4 – Electa George
June 7 – John Van Horne
September 24 – Mary Church
October 20 – Sarah Scott

1893 January 20 – Susan Dugham
September 26 – John B. Kellogg
December 12 – Effie Risley

1894
January 1 – Syble Pollay
February 19 – Suzanne Klinkers Waldron
March 26 – Carolyn Gregory
June 23 – Elizabeth Weber
August 21 – Sarah Ann Baker
November 8 – Sarah Jane Hemstreet
December 30 – Willis Mathews

1895
February 2 – Sophia Podgka
July 21 – Elizabeth Dawson
November 26 – Parmelia Baldwin

1896
March 3 – Ann Dady

1897
April 27 – Miriam D. Bellamy

1898
August 10 – Julia Holden

1899
November 15 – Delia Richards
December 4 – Genevieve Murray

1900
February 3 – Ellen Jane Roe
May 14 – Honora Nugent
July 1 – Harriet Gray
October 12 – Lottie Sullivan

1901
September 19 – Rachel Tice

1902
August 24 – Emma P. Sandborn

1903
April 18 – Elizabeth Snell
December 3 – Nora Murphy

1904
February 20 – Catherine Walwrath
March 18 – Margaret McKay
April 27 – Ellen Horan
June 21 – Isabella Pemberton
October 29 – Mary J. Chapman
December 20 – Mita Mulholland

1905
August 4 – Susan Stortz
September 7 – Mary Gilmore
October 25 – Adele Monnier

1906
April 11 – Sarah Rooney

1968
October 26 – Lawrence Mocha

The Ramblings of a Mad Woman

When I first started this blog, I did it in order to help other people find their forgotten ancestors. I persuaded my State Senator, Joe Robach, to draft legislation in 2011 that would allow for the release of patient names, dates of death, and location of graves to the public, which he introduced to the New York State Legislature. It first appeared on March 23, 2012 as S6805-2011. On January 8, 2014, it was reintroduced as S2514-2013.

There are at least 17 former New York State Hospitals / Insane Asylums that have been renamed, closed, demolished, or turned into New York State Prisons. The cemeteries located on former NYS Hospitals are filled with anonymous, unmarked graves. Willard alone has close to 6,000. Some of these former State Hospitals, such as Buffalo and Rochester, used city or county cemeteries and they are filled with the nameless as well. How many? I do not know. How long will it take to give these people the dignity in death that they deserve? When will they be allowed to rest in peace? When will they be remembered as fellow human beings who were on the same earthly path as everyone else before their lives and their freedom were taken from them? What else do I have to do to get the attention of the Governor and Assembly members to release the names of former patients who lived and died in these warehouses? The Department of Health and Human Services declared last March that patient medical records may be released to the public after 50 years of a patient’s death. Now we have to ask for another bill to be drafted and introduced to the Senate again in order to allow New York State to release medical records. After seven years on this journey, I am tired and just don’t have the desire to fight anymore.

Before I began my research on Willard and the other New York State Hospitals and Custodial Institutions, I considered myself to be normal, whatever that means. All kinds of interesting things happened to me and I wondered, why? I lost my job, went through menopause, osteoarthritis, and a neurological problem that I have always had, had become progressively worse. Depression is one of those “Mental Illnesses” that I never thought of as a “Mental Illness.” I thought that depression was a normal human emotion that one experiences when subjected to trauma or pain in any of its various forms. I would not have believed that I was “Mentally Ill,” until my neurologist, who I no longer go to, informed me that I have delusional thinking and I’m paranoid because I believe that I can no longer protect myself if I needed too like being able to run from a dangerous situation. This came from a 30 something year old man in perfect health who stands over 6 feet tall. I’m 57 years old, stand 5 feet 2 inches tall, and have Familial or Essential Tremors in my head and my right hand. My thinking is based on facts, not delusions. I thought that doctors were above this archaic type of thinking but I was wrong. Many men, even doctors, still don’t get it.

The reason why I am relating my story is that I am sure that had I lived one hundred years ago with these same progressive diseases, I would have been locked up! I would not have believed that a doctor would ever say such things to me and I can only imagine what must have happened to my great-grandmother, Maggie, who died at Willard State Hospital 86 years ago. If you wonder why people do not seek help, my little story is why they don’t. Am I labeled? I don’t know. It is frightening when you realize that you’re not feeling like your normal self, and seek help, and this is what a doctor says to you. Maybe we all need to be a little more aware of who is crazy and who is normal and realize that the people buried in those anonymous, unmarked graves were human beings like me, and you, just trying to make their way in life. Please write or call your New York State Senator so that this bill will become a law. Thank you!

THEY’RE BURIED WHERE? by Seth Voorhees

Rochester State Hospital – Rochester, NY

Rochester State Hospital, formerly Monroe County Insane Asylum
Rochester, Monroe County, New York
1600 South Avenue

The history of the Rochester State Hospital is a little confusing because the lines blur between the Alms House and the Insane Asylum which would later be known as the Rochester State Hospital. Four structures stood on the same tract of land, facing South Avenue, between Elmwood and Highland Avenues, in the Town of Brighton. None of these structures remain. The original Monroe County Poor House or Alms House was built in 1826. The Work House was built in 1853 at the cost of $22,707.60 and contained ninety-two cells for men, women, and occasionally children. In 1865 and again in 1868, fires broke out and the buildings were replaced. In 1869, new brick buildings were constructed. At some point the Work House was renamed, the Penitentiary. Before county “Insane Asylums” the “insane” were kept in jails and county poor houses, separated from the other inmates and usually in chains or handcuffs. The first buildings of the Monroe County Insane Asylum were opened in the spring of 1857. It is at this point that the lines become blurred because the official year of the opening of the asylum is 1863.

According to W.H. McIntosh: In 1856, “there were thirty-seven insane confined in thirteen cells [in the alms house]. These cells were low, unventilated, and unwholesome, and in dimensions but four and a half by seven feet. In this small space were crowded as many as four persons, some of whom, wild and raving, were chained and handcuffed. There was no out-yard, and no guards to stoves to prevent self-inflicted injury. It was resolved to erect a permanent and convenient building especially for the insane. It was constructed at a cost of somewhat over three thousand dollars, during 1856 and 1857.” (1) The Monroe County Insane Asylum opened in the spring of 1857 to accommodate forty-eight people and was under the supervision of Colonel J.P. Wiggins and wife. An additional wing to house the superintendent and employees was completed in October 1859 at a cost of $26,791.57. Because of the lack of room, several patients still remained in the Poor House. In 1870, an additional wing was constructed to accommodate twenty-five more patients. In 1871, the number of inmates rose to one hundred. In 1872 an entirely new, main building was constructed with forty-one rooms at the cost of $18,000, and with various improvements close to $50,000. Dr. M.L. Lord was the warden and physician beginning in 1868.

According to the 1872 Proceedings of the Board of Supervisors of the County of Monroe: “Your Committee in tracing back the history of Monroe County Insane Asylum to 1863, when, by an act of the Legislature, it was made a separate institution from the County Alms House, find that the whole number of inmates supported at that institution during the year was sixty-three. The number of inmates now in that institution have increased to 137, and has more than doubled during the last nine years…” (3, page 18).

The Alms House – In 1860, a building, “was set apart for the infirm old men.” (1) George E. McGonigal was the Superintendent, and Dr. Azel Backus was the physician. On February 28, 1872, a building committee was appointed for a new almshouse to be built at the cost of $59,600. “The almshouse was located midway between the insane asylum and the penitentiary, and fifty feet south. The architect employed was J.R. Thomas. The entire cost of the work was $72,948.44.” (1) In late 1872, the new Monroe County Alms House was completed and opened. It was built in front of the old and at some point thereafter, the original poor house was torn down.

The Insane Asylum – The State of New York purchased the land and the buildings of the Monroe County Insane Asylum for $50,000 bringing it into the State Care system. On July 1, 1891, it was renamed, Rochester State Hospital. Dr. Eugene H. Howard was the first Superintendent and served in that position for several years. (2) The Rochester State Hospital was torn down in the 1960s to make way for The Al Sigl Center. Rochester State Hospital faced South Avenue, the address was 1600 South Avenue. The Al Sigl Center faces Elmwood Avenue, the address is 1000 Elmwood Avenue.

So it appears that in 1857 a separate building was constructed for the sole purpose of becoming the Monroe County Insane Asylum. In 1863, by an act of the New York State Legislature, the asylum was officially separated from the alms house. In late 1872, the NEW Alms House was opened. In that same year, an entirely NEW main building was constructed for the Insane Asylum complete with a Mansard Roof. If you look at the sketch of these three buildings (W.H. McIntosh’s book of 1877), you can see that all three are separate but they stand side by side, three in a row: Far left, Penitentiary; Center, Alms House; Far right, Insane Asylum.

Work House, County Infirmary, Insane Asylum 1877

Work House, County Infirmary, Insane Asylum 1877

There is an interesting map that was drawn in 1984 during an excavation of Highland Park that shows the footprints of the original wood frame and brick buildings. At this time, the remains of approximately 900 people were discovered. (4) In April 2013, while researching the history of the poor house and the asylum, I came across the “Chaplain’s Report” from 1872 which stated that the unmarked cemetery, “familiarly known as the ‘bone yard,” was “an enclosed lot of the public farm in the rear of the penitentiary.” (3) This cemetery was located behind the old Penitentiary and was used to bury the inmates of the Penitentiary, Alms House, and Insane Asylum from 1826 until January 8, 1873 when the County Board of Supervisors directed the Superintendents of the Penitentiary and of the County Poor, “to discontinue the burial of paupers or criminals in the old burying ground attached to the penitentiary, and to have the remains of all such interred in Mount Hope cemetery.” (3) The county board of supervisors of 1872 were well aware that this cemetery existed but apparently, it was never recorded. Perhaps the document concerning this cemetery hasn’t been discovered yet. The Remember Garden in Highland Park marks the location of this long forgotten cemetery.

Map of Penitentiary, Poorhouse, Asylum

Map of Penitentiary, Poorhouse, Asylum

305 bodies were interred at Mount Hope Cemetery in 1985. The remaining bodies (approximately 600) (4) were left in the ground at Highland Park. The picture below shows a man preparing the ground for the monument that was or will be placed in memory of these original inmates. There is NO monument in Mount Hope Cemetery for the inmates of The Monroe County Insane Asylum / Rochester State Hospital, most of whom were buried in anonymous, unmarked graves in Section Y. If bill S2514-2013, which was introduced to the New York State Legislature by Senator Joseph Robach, becomes a law, then these people will no longer be anonymous.

Mount Hope Cemetery 11.2011

Mount Hope Cemetery 11.2011

“Work is now underway to install a monument in memory of the 305 Rochester poor house remains now interred in Mount Hope Cemetery. From the picture you can determine that the monument is in Section Y at the far west end. Note the Civil War plot, the Fireman’s monument and the Steam Gauge and Lantern Co. monument in the background. In July, 1984 when terracing land for a Highland Park addition, a bulldozer unearthed some human remains near the SE corner of Highland and South Ave. Investigation proved these burials were very old. It is believed they are from the Rochester poor house. The burials were not marked and the people were interred in the most simple wooden coffins. These remains underwent an examination prior to their reburial in Mount Hope Cemetery.” 11/2011

I have transcribed the earliest records: Names: Monroe County Poorhouse, Asylum, Penitentiary, Other Charities 1838 to 1860. If you believe that your ancestor was an inmate who lived and died at The Monroe County Insane Asylum / Rochester State Hospital you can search for them at the Rochester – Mt. Hope Cemetery Records online. Here is a brief description of what you will see if you decide to search the records for yourself: Under the heading “Residence,” a street name will be given with no specific address; or it will list the place where the person died such as: Insane Asylum, Asylum, County House, Jail, etc. (Be aware that there was an Asylum Street in the City of Rochester that as far as I know, had no connection with the Monroe County Insane Asylum). About 1891, you will start to see the words “Rochester State Hospital” under “Residence.” At some point in the 1900s, instead of listing the place of death as Rochester State Hospital the address has been given instead as “1600 South Avenue.” In some instances, the family of the deceased claimed the body and buried them in the family plot. In the case of pauper and indigent insane, the hospital buried them in unmarked, anonymous graves at Mount Hope Cemetery. Some unclaimed bodies were donated by state hospitals to state medical colleges for the advancement of medical science in which case no grave will be found.

SOURCES:

1 – McIntosh, W.H., History of Monroe County, New York; With Illustrations Descriptive Of Its Scenery, Palatial Residences, Public Buildings, Fine Blocks, and Important Manufactories, From Original Sketches By Artists Of The Highest Ability. Philadelphia: Everts, Ensign & Everts, 1877, Pages 45-47, Transcribed by L.S. Stuhler.

2 – Hurd, Henry Mills; Drewry, William Francis; Dewey, Richard; Pilgrim, Charles Winfield; Blumer, George Adler, The Institutional Care of the Insane in the United States and Canada, The John Hopkins Press, Baltimore, Maryland, 1916, Pages 199-200, Transcribed by L.S. Stuhler.

3. – Proceedings of the Board of Supervisors of the County of Monroe, for 1872, Rochester, N.Y., Steam Press of Curtis, Morey & Co., Union And Advertiser Office, 1872, Pages 18, 211, 212.

4. – Steckel, Richard H. and Rose, Jerome C., The Backbone of History: Health and Nurtrition in the Western Hemisphere, Cambridge University Press, 2002, Page 162.

Friends of Mt. Hope Cemetery – The Friends of Mount Hope Cemetery are a wonderful group of knowledgeable volunteers who will help you locate your loved one and provide you with all the information you need to locate the grave.

Facebook – Friends of Mt. Hope

USGenWeb Monroe County, NY – Mt. Hope Cemetery Tombstone Transcriptions

Records of the Rochester State Hospital

Photographs of Memorial to Residents of Almshouse, Insane Asylum & Penitentiary by L.S. Stuhler

History of Mount Hope Cemetery – McIntosh 1877

Rochester History – Life and Death in Nineteenth Century Rochester by Ruth Rosenberg-Naparsteck, pages 12 – 22.

1872 “Bone Yard” – The Remember Garden – Rochester, NY by L.S. Stuhler

1873 Monroe County Poor House

The Willard and Rochester State Hospital Connection by L.S. Stuhler

CLICK HERE TO VIEW THE VIDEO They’re Buried Where? by Seth Voorhees

The Inmates Of Willard 1870 to 1900  A Genealogy Resource by L.S. Stuhler

S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate

S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

NEW HIPAA UPDATE March 2013!

Well, the bill has a new number but it’s not dead! Yay! Special thanks to Senator Joseph Robach and Tim Ragazzo!

On March 1, 2013, Tim Ragazzo, Director of Operations & Legislation from Senator Joe Robach‘s office, called me to let me know that the bill was re-introduced (with a new number), to the NYS Senate and has been referred to the finance committee. This is great news because it means the bill is not dead! Now it has to pass in the Assembly. Hopefully, the bill will become law before it expires at the end of 2014.
-L.S. Stuhler at lsstuhler@gmail.com

Willard Cemetery Disk by Roger Luther at nysAsylum.com

Willard Cemetery Disk by Roger Luther at nysAsylum.com

NAMES INSTEAD OF NUMBERS!

Willard Cemetery 2 by Roger Luther at nysAsylum.com

Willard Cemetery 2 by Roger Luther at nysAsylum.com

For more information about these long-closed New York State Hospitals, check out the “Interesting Articles & Documents” page.

LIST OF STATE HOSPITALS

By 1901, there were thirteen state hospitals for the insane in the State of New York. All these hospitals buried their dead in anonymous, unmarked graves. Some had their own cemetery like Willard State Hospital; others used city and county cemeteries like Rochester State Hospital. Most of these state hospital cemeteries are unmarked, unkempt, and forgotten. None of the thousands of former psychiatric patients’ names have been released to the public. Considering that in 1870, the first patient was buried in the Willard Cemetery, which in the year 2012 covers a span of five or six generations, these people have waited long enough to be remembered. When you release the names, you remove the stigma. The following is a list of most of these long-closed state hospitals; there are more.

1. Utica State Hospital – Counties of Fulton, Hamilton, Herkimer, Montgomery, Oneida, Saratoga, Schenectady and Warren.

2. Hudson River State Hospital – Counties of Albany, Columbia, Dutchess, Greene, Putnam, Richmond, Rensselaer, Washington and Westchester.

3. Middletown State Hospital – Counties of Orange, Rockland, Sullivan and Ulster.

4. Buffalo State Hospital – Counties of Erie and Niagara.

5. Willard State Hospital – Counties of Allegany, Cayuga, Genesee, Ontario, Orleans, Schuyler, Seneca, Steuben, Tompkins, Wayne and Yates.

6. Binghamton State Hospital – Counties of Broome, Chemung, Chenango, Cortland, Delaware, Madison, Otsego, Schoharie and Tioga.

7. St. Lawrence State Hospital – Counties of Clinton, Essex, Franklin, Jefferson, Lewis, Onondaga,Oswego and St. Lawrence.

8. Rochester State Hospital – Counties of Monroe and Livingston.

9, 10. Long Island State Hospital – (Kings Park and Flatbush, Brooklyn) – Counties of Kings, Queens, Nassau and Suffolk.

11, 12. Manhattan State Hospital – (Manhattan and Central Islip) – Counties of New York and Richmond.

13. Gowanda State Homoeopathic Hospital (Collin’s Farm) – Counties of Cattaraugus, Chautauqua and Wyoming.

Additional State Hospitals:

14. Pilgrim State Hospital – Brentwood, Suffolk County, New York

15. Mohansic State Hospital – Yorktown, Westchester County, New York

State Hospitals for the Criminally Insane:

16, 17. Mattaewan and Dannemora State Hospitals

 

Washington State – Grave Concerns Association Model of Memorialization

For the past few years I have tried to get the attention of state and federal lawmakers to pass a law in New York State that would provide for the release of patient names; dates of birth and death; and location of graves, of people who were committed to State Hospitals and Custodial Institutions during the nineteenth and early twentieth centuries who were buried in unmarked or numbered, anonymous graves, whether they be in formerly state, county, or city owned cemeteries. (See My Story) I also asked for a searchable, digital database, available to the public to be included in the bill. On August 22, 2011, I finally got the opportunity to meet with Kate Munzinger, Senator Joseph Robach’s Chief of Staff. Ms. Munzinger took the time to listen to what I was asking for.

Grave Concerns Association

Grave Concerns Association

The reason why I’m blogging about this issue again is because the bill in New York State has not yet become a law. There are caring people in several states who are pushing to get a similar law passed but state and federal representatives will not give them the time of day or they won’t even consider passing such a law because of the misinterpretation of the federal HIPAA Law. I want to help those people in other states by sharing with them what was shared with me. If not for Laurel Lemke, Chair of Grave Concerns Association, I don’t think I would have received the attention of Senator Robach. In 2004, Ms. Lemke and others, had fought for this cause, and managed to amend law 6678 in the State of Washington that allowed for the release of patient names for the purpose of memorialization. She emailed me the bill which I in turn gave to Kate Munzinger, Chief of Staff; Tim Ragazzo, Director of Operations & Legislation; and Senator Joseph Robach. A bill was drafted and introduced to the New York State Legislature in March 2012. The title of the bill is: “An act to amend the mental hygiene law, in relation to patients interred at state mental health hospital cemeteries.”

Western State Hospital, Pierce County, Washington, has 3,218 patients who are no longer anonymous. Grave Concerns Association has raised funds and replaced 1,200 names since 2004. The forgotten have been remembered with dignity. With community fund raising efforts and countless volunteers, inscribed headstones that identify the patient’s name, date of birth and death, have been placed at the graves; and a searchable, digital database has been uploaded to the internet. In contrast, New York State, with 22 or more former state custodial institutions combined has upwards of 11,000 or more people buried in anonymous graves who through no fault of their own have been erased from history. Willard State Hospital alone has close to 6,000 patients buried in anonymous graves.

Sherry Storms, Stacie Larson and Laurel Lemke, Grave Concerns Association, John Lucas, countless volunteers, and the State of Washington deserve to be recognized for their ground breaking, painstaking work, and above all, their model should be copied in every state in the union. The New York State bill is important and necessary in order to restore the dignity and personhood of the thousands of people who were incarcerated and died at former New York State Insane Asylums (later renamed State Hospitals), and State Custodial Institutions (for Feeble-Minded and Epileptic persons). When the bodies of the inmates were not claimed by family members, they were buried in anonymous, unmarked graves. Many of these unclaimed bodies went to medical colleges and pathology labs for the furtherance of medical science. These people deserve to be remembered, and we need to remember what happened to them so that we do not repeat the mistakes of our ancestors.

It is my hope that the State of New York, and all states, will pass similar legislation and follow the Washington State – Grave Concerns Model. They have done a great service for the community and the nation by naming the forgotten; setting up an exemplary, searchable, digital database; and trying their best to remove the stigma of mental illness.

WASHINGTON:
Grave Concerns Association
Volunteer Carla Wutz, descendent of Michael Wutz, updates the data base on the Grave Concerns website.

Grave Concerns Cemetery Database – Version 1.0 – Western State Hospital Historic PatientCemetery
http://www.wshgraveconcerns.org/search-the-database.html

Washington State Archives – Digital Archives

The Willard and Rochester State Hospital Connection

“The raving maniac, the young child, the infirm old man, and the seducer’s victim, were crowded in a building whose remembrance must seem painful.”
– W. H. McIntosh, History of Monroe County, New York

To the west of the entrance of the Vietnam Veterans Memorial of Greater Rochester in Highland Park (1440 South Avenue, Rochester, NY) stand three cream colored wooden arbors with benches, a lovely brick patio, and a small garden. This site, now known as The Remember Garden, marks the old burial ground that was used to bury paupers and criminals in unmarked, anonymous graves during the nineteenth century. In July 1984, approximately 900 human remains were discovered in this unmarked cemetery which was located behind the old Penitentiary. The bodies are believed to be the inmates who lived and died at the Work House (Penitentiary), Alms House, and the Insane Asylum between 1826 and 1863. 284 to 305 remains were re-interred in Mount Hope Cemetery in 1985. The memorial that marks the location of the cemetery in Highland Park was dedicated in May 2009, and the memorial to mark the re-interred remains at Mount Hope Cemetery may be dedicated in the spring of 2012. See 1872 “Bone Yard” The Remember Garden.

Remember Garden, Highland Park

Remember Garden, Highland Park

It is indeed unfortunate that thousands of poor “sane” men, women, and children, who lived and died in the county poor houses and other charitable institutions of our country, were buried in anonymous, unmarked graves; but their final resting places can be marked with engraved headstones. The same rule does not apply for those who were labeled as “insane” which also includes people who were diagnosed with epilepsy. It is virtually impossible for family researchers to obtain the medical records of their ancestors who were incarcerated at these long closed insane asylums because of the federal HIPAA Law which states, The Office for Civil Rights enforces the HIPAA Privacy Rule, which protects the privacy of individually identifiable health information; the HIPAA Security Rule, which sets national standards for the security of electronic protected health information; and the confidentiality provisions of the Patient Safety Rule, which protect identifiable information being used to analyze patient safety events and improve patient safety.” This rule has also been applied to burial ledgers and death records of former NYS Hospitals and Custodial Institutions. Everyone has been forced to sign HIPAA documents at their doctor’s office. Most people interpret this law as one that applies to the living, not the dead. An individual’s right to privacy ends at death but the right of patient confidentiality apparently lasts forever. What is even more confusing is that a few states have interpreted this federal law differently than New York State. SEE NEW HIPAA UPDATE!

Monroe County Poor House & Rochester State Hospital

Monroe County Poor House & Rochester State Hospital

Washington, Oregon, Massachusetts, and Minnesota have allowed the release of the names of former psychiatric patients buried in anonymous, unmarked graves to the public. In some cases, these states have provided funds for cemetery restoration and engraved headstones. One would presume that if other states have released the names of patients, then New York State should be allowed to do the same. To deny our ancestors this simple remembrance, for all eternity, on the grounds that they were unfortunately and unnecessarily labeled as mentally ill, is unconscionable. The people of the state and the country have a right to know where their ancestors are buried; and the patients should have the right to be remembered with dignity.

Bill S2514 has been introduced to the New York State Legislature by Senator Joseph E. Robach. Let’s keep our fingers crossed that this bill becomes a law.

So, what does Willard State Hospital have to do with Rochester State Hospital? (The main building of the Willard State Hospital was demolished in 1984/85. Some of the buildings currently belong to the NYS Prison System / Willard Drug Treatment Facility).

The Willard Act of 1865 was “An Act to authorize the establishment of a State asylum for the chronic insane, and for the better care of the insane poor, to be known as The Willard Asylum for the Insane.” This law introduced a new policy that “was to relieve the county of their care and devolve it upon the State through the ‘Willard,’ and the State Lunatic Asylum at Utica.” Willard opened its doors on October 13, 1869. From the beginning New York and Kings Counties were exempt from this law; Monroe County quickly followed. “An Act In Relation To The Chronic Pauper Insane” was passed on April 25, 1871. The board of State Commissioners of Public Charities was authorized to hear and determine all applications by the county superintendents of the poor of the counties of New York State. On written application the several counties had to prove to the Legislature that “the buildings and means employed to take care of the chronic pauper insane of such county are sufficient and proper for the time being for such purpose.” Monroe County was exempted from sending their pauper chronic insane to the Willard Asylum about the year 1872.

Willard State Hospital, Main Building, circa 1898.

Willard State Hospital, Main Building, circa 1898.

The Willard Asylum was unique because it was created to end the poor house system of caring for the insane. From 1869 to 1890, an inmate once committed to the facility, was prohibited from being returned to the county poor house unless the county was exempted, or the county did not want that particular patient returned. Willard provided a permanent home for the pauper chronic insane or “incurables” of the state. The term chronic refers to an individual who suffered from insanity for more than one year. Counties that were not exempt from the law were responsible for transporting their pauper chronic insane to Willard and paying the cost of the patients’ care, maintenance, and clothing. Willard was located in the towns of Ovid and Romulus, Seneca County, New York, on the shores of Seneca Lake and is roughly 80 miles from Rochester.

According to The Proceedings of the Board of Supervisors of the County of Monroe, 1871, the only patient who was sent to The Willard Asylum for the Insane by the County of Monroe was Francis J. O’Brien, at the yearly cost of $129.00. The U.S. Federal Census of 1870, which is the first census of the Willard Asylum, shows that Mr. O’Brien was 29 at his last birthday; male; white; born in the state of Michigan; insane. In 1880, he is listed as: 40 years old; married; occupation, physician; born in the state of Michigan; insane; living in the North wing of the main asylum building. The 1880 U.S. Federal Census Schedules of Defective, Dependent, and Delinquent Classes lists him as: residence when at home, Rochester, Monroe; form of disease, Chronic Mania; duration of present attack, 13 years; total number of attacks, 1; age at which first attack occurred, 27; what has been the total length of time spent by him (or her) during life in such asylums, 11 years. In 1900, he is listed as 60 years old; inmate, white; male; married; born in Michigan. His name does not appear on the 1910 Federal Census. Mr. O’Brien died between 1900 and 1910 and spent at least 31 years of his life locked up at Willard as did thousands of New Yorker’s during the last two centuries. We will never know how or when he died, or where he was buried unless current law changes.

The State Care Act passed in 1890. It was An Act to promote the care and curative treatment of the pauper and indigent insane in the counties of this state, except New York, Kings and Monroe counties, and to permit said excepted counties or either of them, in accordance with the action of their respective local authorities, to avail themselves or any one or more of them, of the provisions of this act.The State Commission in Lunacy was given the power to divide the State into hospital districts and dropped the distinction between acute and chronic asylums. This law also renamed state insane asylums to state hospitals. Willard was no longer an asylum for the chronic insane only and was renamed Willard State Hospital which served the counties of Allegany, Cayuga, Genesee, Ontario, Orleans, Schuyler, Seneca, Steuben, Tompkins, Wayne and Yates. The Monroe County Insane Asylum was renamed Rochester State Hospital and served the counties of Monroe and Livingston. On July 1, 1891, Monroe County came into the state system and the asylum was purchased by the state. The New York State poor house system of caring for the insane ceased to exist October 1, 1893, when the State Care system went into effect.

The commonalities of the Willard Asylum for the Insane and The Monroe County Alms House, were they both shared the same architect; Mr. John Rochester Thomas, born on June 18, 1848, at Rochester, New York. According to W. H. McIntosh in his book History of Monroe County, New York: “John R. Thomas, one of our most enterprising young architects, commenced the practice of his profession here in the year 1866, and now ranks with the leading architects of the country. Mr. Thomas has during the past ten years accomplished a very large amount of work. He introduced the Mansard roof, which was first applied to private dwellings. Mr. Thomas has made a specialty of the study of Gothic art, believing it will be the architecture of the future in this country. He has also designed largely for private dwellings in the city and adjoining country, among which is the residence of H. A. De Land, of Fairport, one of the most elegant and costly private residences in western New York. He also designed Rochester Theological Seminary buildings, Sibley Hall, on the University grounds, the Opera House, the Monroe County almshouse, the University of Virginia, at Charlottesville,Virginia, and the New York State Reformatory buildings, at Elmira. In the year 1874, Mr. Thomas received a very honorable appointment from Governor Dix as one of the State architects, and was assigned at once to the charge of the Reformatory at Elmira, which position he now holds.” (1) The choice of Dr. John B. Chapin, first Superintendent of The Willard Asylum for the Insane, choosing Mr. Thomas as the architect of The Willard Asylum for the Insane caused a great deal of controversy in New York State because at the time he was not yet a state architect. The “Mansard” or French roof is prominent in many of Mr. Thomas’s architectural designs.

The differences between Willard and Rochester State Hospitals, was that Willard had its own twenty-five acre cemetery located about a mile down the road from the facility which contains the remains of 5,776 patients buried in anonymous, unmarked graves. The Rochester State Hospital used Mount Hope Cemetery to bury its inmates. I spoke to a very knowledgeable gentleman from the Rochester Office of Mental Health who stated that the address of the Rochester State Hospital was 1600 South Avenue. He said the facility was torn down in the 1960s to make way for the Al Sigl Center. The address of the Al Sigl Center was given a new address by the U.S. Postal Service: 1000 Elmwood Avenue (corner of South Avenue). In the past, I have searched the Mount Hope Cemetery Records looking for family members and had often seen “1600 South Avenue” given as the residence for many people. I always wondered what it was and on occasion I had Googled the address but received no hits. Now I know why, the address no longer exists.

I have transcribed the earliest records: Names: Monroe County Poorhouse, Asylum, Penitentiary, Other Charities 1838 to 1860. If you believe that your ancestor was an inmate who lived and died at The Monroe County Insane Asylum / Rochester State Hospital you can search for them at the Rochester – Mt. Hope Cemetery Records online. Here is a brief description of what you will see if you decide to search the records for yourself: Under the heading “Residence,” a street name will be given with no specific address; or it will list the place where the person died such as: Insane Asylum, Asylum, County House, Jail, etc. (Be aware that there was an Asylum Street in the City of Rochester that as far as I know, had no connection with the Monroe County Insane Asylum). About 1891, you will start to see the words “Rochester State Hospital” under “Residence.” At some point in the 1900s, instead of listing the place of death as Rochester State Hospital the address has been given instead as “1600 South Avenue.” In some instances, the family of the deceased claimed the body and buried them in the family plot. In the case of pauper and indigent insane, the hospital buried them in unmarked, anonymous graves at Mount Hope Cemetery. Some unclaimed bodies were donated by state hospitals to state medical colleges for the advancement of medical science in which case no grave will be found.

At the very least, the location of these graves should be marked in Mount Hope Cemetery with a memorial indicating the final resting place of the patients of The Monroe County Insane Asylum and Rochester State Hospital. Providing individual, engraved markers would be ideal but without the actual death records this will not be possible. The Rochester State Hospital burial records do exist and should be released to the public, along with all former state hospital burial ledgers in a unified, digital, database in order that descendants and caring citizens can find their ancestors and mark the graves of these forgotten souls if they wish to do so. Hopefully, a new bill introduced into the New York State Legislature by Senator Joseph E. Robach will allow the release of the names of these people who have remained anonymous for over one hundred years. I would like to thank Senator Robach and his staff for writing and sponsoring the bill.

As a life-long Rochester area resident, I am proud to live in a community that has provided so many genealogical resources. I am truly grateful for The Friends of Mount Hope Cemetery who have taken the time and effort to assist me on more than one occasion. A few years ago, volunteer Frank Gillespie, who recently passed away in January 2012, helped me locate my great-grandparents’ grave by providing a map and directions. Marilyn Nolte, President of The Friends of Mount Hope Cemetery, has located the section where many of the Rochester State Hospital patients are buried, and she patiently answered numerous questions regarding the older sections of the cemetery, unmarked graves, and the responsibilities of plot owners. I thank them for their dedication, knowledge, and help.

(1) SOURCE: McIntosh, W. H., History of Monroe County, New York; With Illustrations Descriptive Of Its Scenery, Palatial Residences, Public Buildings, Fine Blocks, and Important Manufactories, From Original Sketches By Artists Of The Highest Ability.Philadelphia: Everts, Ensign & Everts, 716 Filbert Street, 1877, Page 142.

S6805-2011 – S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate

NEW! UPDATED BILL: S2514-2013 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

S6805-2011 – NY Senate Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Senate.

A10636-2011 – NY Assembly Open Legislation – Relates to patients interred at state mental health hospital cemeteries – New York State Assembly.

Imagine not being remembered in death because in life you were diagnosed with diabetes, heart disease or cancer. Most people would find this kind of treatment cruel and inhumane but it exists to this day for people who were diagnosed with a mental illness or developmental disability during the nineteenth and early twentieth centuries. This bill is important and necessary in order to restore the dignity and personhood of the thousands of people who were incarcerated and died at former New York State Insane Asylums and Custodial Institutions. When the bodies of the inmates were not claimed by family members, they were buried in anonymous, unmarked graves. They deserve to have their names remembered and available to the public in a searchable database.

The list of these former New York State Hospitals includes but is not limited to: BinghamtonBuffaloCentral IslipCreedmoorDannemoraEdgewoodGowandaHudson RiverKings ParkLong IslandManhattanMatteawanMiddletownMohansicPilgrimRochesterSt. LawrenceSyracuseUtica, and Willard

The Feeble-Minded (Intellectual Disabilities) and Epileptic Custodial Institutions of New York includes but is not limited to: Craig Colony for EpilepticsLetchworth Village for Epileptics & Intellectually DisabledNewark State School for Intellectually Disabled WomenRome State School for Intellectually Disabled Adults & Children, and Syracuse State School for Intellectually Disabled Children. There may be more.

There is no good reason why these long deceased souls need to be punished and stigmatized in death for an illness or disability that they lived with in life. The great majority of these former state hospitals closed in favor of smaller group home settings or changed their names to Psychiatric Centers about 1974. The cemeteries that belonged to these institutions are inactive. I do not understand why anyone would need to have their name withheld from any list until 50 years had passed after their death. This requirement in the bill only serves to feed the stigma. Let’s hope that even with this flaw, it becomes law.

Photo by Roger Luther at www.nysAsylum.com

Photo by Roger Luther at http://www.nysAsylum.com

The Willard Cemetery - Veterans

Veteran’s Graves 5.14.2011

Willard Cemetery 1 - 5.14.2011

Willard Cemetery 5.14.2011